Feeling so frustrated: I hate the unknown... - Endometriosis UK

Endometriosis UK

71,792 members52,583 posts

Feeling so frustrated

Bubbles88 profile image
1 Reply

I hate the unknown. I don't like not understanding or not knowing why something is happening. Endometriosis likes to push that part of me. I have posted on so many things about my first lupron injection. It feels almost like im spiraling and left to figure it out for myself. My dr was very vague on side effects and it seems like I just have so many oddball things going on and I don't know if its from the lupron or not. My dr hasn't been very helpful and it seems like i hear the same things when i try to ask for advice from people. I know my emotions are now all over the place. I feel miserable and can't stand not being able to understand what's going on w it h me, i feel so disconnected from myself right now

Written by
Bubbles88 profile image
Bubbles88
To view profiles and participate in discussions please or .
Read more about...
1 Reply
StefaniaJW profile image
StefaniaJW

It's hard to not really understand what you're going through. Having a doctor who doesn't lay out all the side effects and how the medication works or is not sympathetic enough is the worst though. The worst side effect Lupron can lead to is permanent bone loss so I suggest you look into getting your vitamin D levels checked out while on it and make sure to supplement it if necessary (your GP will prescribe the blood work and give you the supplements if needed).

I suggest switching endo specialist if you don't feel supported by this one.

Not what you're looking for?

You may also like...

No endo found - feel so frustrated

my surgeon says “no endometriosis found, you probably have IBS” and it felt like such a cop out....

Feeling down, frustrated and zoladex

when it eventually comes and scared that I will feel like this forever once my ovaries are removed...

Feeling fed up and frustrated

my lady bits and feeling exhausted...pain killers aren't touching the sides. And I know it is going...

Feeling a bit frustrated 😔

sense. I just feel like it’s was a complete waste of time and having heard nothing from St Mary’s...

Desperate and feel so alone

laxatives to get rid of my pain. I do not know what to do, I feel like noone believes the pain I...