Advice on injections

[lorraine1981]

Had hospital appointment today. Diagnosed in January this year after a laparoscopy. Been suffering a lot pain and other symptoms before, during and after monthlies. Life is really shit (sorry for language) at the moment. My consultant has put me forward to have injections for the next 3 months. Very scared as i dont like needles. Has anyone had the injections? Does this help with the endo pains and side effects? Thanks

[Fionac1981]

Hi.

I'm sorry to hear your having a rough time at the moment.

I've been on 2 types of injections, and like you, I'm scared of needles. However for me it was worth it.

I was on zoladex for 14months, which is the worst one ,as it's injected in stomach, and is uncomfortable. Then I was changed to depecaptyl for 15months which is nicer, as it's injected into bottom, so didn't really know about it.

I would go back on either. If I could, I would be on them now. Even after major surgery I felt at my best on the injections. I wasn't meant to be on them that long, but they wouldn't let stop until after surgery . For me, it was massive help, I had no bleeding, and my pain was so good. I felt like I was me again, and could plan things. It felt like I could have a life again. If I was given the option , I would jump at it.

If you do go ahead, go on HRT, the hot flushes are awful otherwise, and I got major headaches without it X I did put on alot of weight, but it falls off again once your off the medication. Please remember I was on these for 3 years, so if it's a short time, you may not notice any weight increase, it was still worth it tho.

I hope this helps, and you get some relief soon.

[Tracylou1304]

I have been having these now for the last year and yes they have helped with endo pain but now I’m in constant pain with my back and pelvis,not sure which one is worse. Had hysterectomy in 2009 but they left my ovaries, i am currently on a waiting list to have them removed but have been waiting since March this year, i am so fed up just feels that because people can’t physically see what’s causing the pain that they think your faking or that it can’t possibly be that bad

[Moonglo]

I normally have a local anaesthetic injected before Zoladex which helps - it’s only a little scratch before blessed numbness. It also helps me afterwards as I tend to get sore for a few hours later otherwise xx

[StefaniaJW]

A diagnostic laparoscopy is what you underwent.

They cut you open, take a piece of endometriosis and send it to the labs to get a confirmation you have endometriosis, but they don't remove it all, so you wake up from surgery and will be in just as much pain as before afterwards.

I strongly recommend receiving a full removal of all endometriosis through excision surgery, which is the gold standard of endometriosis.

If you need the names of the most well-trained, skilled and experienced (+10 years) excision surgeons working in the UK, please PM me!!