I am very much at the beginning of this journey and finding this site so useful, but honestly feeling overwhelmed!
from what i have read so far i am understanding that i am in the minority, because i eventually had a doctor who listened to me and it only took me from april-september to get an exclusive answer by lap that i have endo on my ovaries.
I went for a smear in 2017 and had a loop to remove bad cells, but was complaining to the nurse there that i was really struggling with my periods. i told her some days i felt like an old lady because of the pains being so bad in my legs i just wanted to crawl around everywhere and was having heavy periods that seemed to be getting worse with each month. the pain was getting me down, i was tired all the time which was having an impact on my relationship. she said "you may have a spot of endometriosis" which rang a bell for me as my mum has it after she had me and it was attached to her bladder and bowel, she had been misdiagnosed and insisted on having it investigated again because she was in so much pain.
that was in october 2018, in march/ april this year i went to the doctors again because i was in so much pain and thought i was bleeding from my bum when i was on, so the doctor sent me for a colonoscopy, which i had in june. the doctor said i was all clear and that it could be IBS related to my period but he was going to write to my GP about investigating for endo because it sounded like it could be that. I went for my lap in september (the same doctor who treated my mum the second time 28 years ago did mine) when i went to see him a couple of days ago he said to me that i had only a small amount on both ovaries and if i take the pill it will cure it.
I left feeling confused and conflicted, when i initially went the doctors they offered me the pill and i said i would rather be in pain, i have tried serveral pills in the past and they dont agree with me, they make me feel terrible in myself and I'm really anxious about taking hormones because of this. i feel like i have no other choice, so I'm just wondering if there is anything holistic that people have found helps? I will take the pill if i have to but i know my mental health will suffer.
any advice would be greatly appreciated!
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GemmaSands
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Hi Gemma, I know that in your situation it is difficult to stay calm, but actually peace of mind helps a lot. I am also against of pills and my doctor was as well mad at me because of that. I will have another surgery soon, this mainly because of Myomen that haven't being treated before in laparoscopies and now are quite big and giving me lots of troubles. The doc told me that if I don't take the pill those will grow and jeopardize my uterus. But at the end refered me to the specialist. Trough the years I can tell you how stress and food can trigger inflammation, and that includes endometriomas. I will not say that they will disappear or cure them, but deffinitely if you start to observe your body and see what foods are maybe causing you more inflamation, you start to manage your health better. Magnesium and Vitamin B helps me a lot with the chronic fatigue, and also of course, be compasionate with yourself and try a napp if you need it. I hope it helps a bit!
thanks so much for replying, I'm trying to read up as much as possible but as i have said everything is new to me some i still feel like it is sinking in, I was just so relieved they actually found something because I felt like i was losing my marbles. i suppose its just a period of trial and error now. reading some of the womens stories on here i cant believe the treatment they have had.
Or me it was also a relief to know that there was a reason behind. At the same time the journey begins and one has to also get in peace with the past and start a new relationship with oneself. Good luck in your journey 🙋🏻♀️
So it is your choice if you want to take hormonal treatment, many do find that it helps with their symptoms, but thy does not mean you have to take it. And it is NOT a cure. I want to be clear about that so you don't take under the illusion that it is.
I know some women use other things to try and cope and manage their symptoms such as changing their diets to an anti inflammatory one, acupuncture or cbd oils. It's about seeing what works for you.
I am also at the start although it has been 14 months to get a diagnosis ( I assumed I was right when googling my symptoms and took certain self care steps anyway just in case!).
To agree with previous comments I have found diet and stress relief to be helpful. I'm still on painkillers but the pain is less thanks to cutting out dairy and meat, doing yoga and meditation and avoiding sitting for too long in the same position.
Plus the ever present hot water bottle and loose PJs! I've tried acupuncture too but didn't work for me.
I was prescribed the pill by a not very good doctor to diagnose endo (despite being in pain all that time so scarring so wouldn't diagnose it...). I tried it for 4 days and couldn't cope so completely empathise.
I have found reflexology is really helping me. My reflexologist is amazing and provides treatments to suit me and how I’m feeling. I have had six sessions so far and I plan to have more. It can take 6-8 sessions to notice a difference. I noticed after 3 sessions. I have been having a sessions a week and I can feel my pain increasing nearer the time of my next session. My menstrual flow has also become lighter. I have also cut out gluten and caffeine. This has also helped my symptoms.
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