Un-diagnosed Endo: Hi Ladies! Desperately... - Endometriosis UK

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Un-diagnosed Endo

lea92 profile image
4 Replies

Hi Ladies!

Desperately after some advice/stories from you lovely people!

To cut a long story short.... I’m convinced I have Endo however following a Laparoscopy I have been told I haven’t....

I have all the symptoms.... and it’s been ongoing now for approx 12 years (I am 27)

Has anyone has a laparoscopy and been told they don’t have it.... to find out at a later date that they actually do?

I’m at the end of my tether with this and just want answers (which I am not getting)

I’ve been referred to another specialist and even tempted to pay to go private!

Many thanks

Louise x

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lea92
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4 Replies
AllthatGlitters profile image
AllthatGlitters

Hi yes I was told I didn’t have endometriosis after my lap at a BSGE centre but my GP says that I do due to my symptoms and ongoing problems.

Have you been tested for the likes of adenomyosis too? This is done via MRI scan x

lea92 profile image
lea92 in reply to AllthatGlitters

I’ve only ever been tested for Endo.... nothing else that I am aware of? I am hoping to be referred to another consultant so may bring up other possible diagnosis? X

AllthatGlitters profile image
AllthatGlitters in reply to lea92

I would push for an MRI to rule it out xx

lea92 profile image
lea92

Hi Lindle! He was a consultant gynaecologist.... that’s all I know really! Read his profile and looks like he specializes more in infertility and high-risk pregnancies though? X

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