Crying with pure joy

[Rubyjune25]

I had surgery yesterday morning and it went incredibly. I’m Ruby an 18yr student whose been struggling with chronic pain for the past two years stopping my social life, causing me to have to stop education for 8months and quite frankly damaging my mental health. I got thrown from one doctor to another over and over again, being repeatedly told “it could be but I hardly doubt it” and “the statistic just aren’t there” I honestly wanted to say I can also give you statistics “it takes on average 7 years to diagnose” “so if a patient is mid/late twenties which is often the age of diagnosis that means they were my age when they developed it, they would’ve come to you at my age in this pain and were ignored just like you’re trying to do to me.” I self diagnosed myself with Pcos when I was 15/16 I had all the symptoms so I went to the doctors and I was correct and they put me on 4 different pills throughout the year as my body didn’t like 3/4. When I was 16 I had an emergency appendectomy which unfortunately didn’t go as planned a day surgery surgery meant to take half an hour allowing me to leave the same day turned into 3.5 hours in theatre and an 1.5 hours in recovery room followed my four day stay in hospital on morphine. I remember one of the first things the surgeon told me was “you need to see a gynaecologist” so that’s what I did however been under 18 and not sexually active I was dismissed constantly, yet I had every other symptom “you just have pco” “you’re Ibs is causing you this pain” “this could be your mind manifesting this pain” I would cry out of pure frustration of not being taken seriously purely because of these two factors. I persisted and I persisted and finally 2 years later (I’m very thankful I didn’t have to wait for 7years) I had my surgery and YES I DO HAVE ENDOMETRIOSIS. I cried with HAPPINESS, I know majority of people aren’t with me on that when they learn they have a life long condition that causes horrible side effects but I was so grateful. Grateful I wasn’t crazy, this pain was real. Grateful that I was now being listened to. Grateful that people no longer saw me as just wanting attention. Grateful that I knew my body. Grateful that I trusted in God. Grateful that I could now begin my life again! I haven’t had one bad thought since my diagnosis maybe I’m naive but I’m just so thankful and yes my life will change but hey I will be able to have one! And I will tackle any complications that come with this condition, I just know I will just like every other person who has endo, we got this girlies! I also want to thank this community that has been supporting me these last two year, thank you. Today is a great day to be alive❤️

[HikerGirl]

Rubyjune25, your post brought tears to my eyes. It’s amazing to see you feeling so happy and positive, approaching your journey like that can only mean you’re going to make the very most of things!

I felt rather liberated too after my first lap, finally able to put a name to all that pain! What a relief (and thank god I wasn’t going insane!)

So you’re only 18 and you’re already this strong in life? It’s easy to see that you’re going to go on to be your biggest advocate when it comes to your health. Don’t stop standing up for yourself and pushing doctors when they doubt you!

Thank you for sharing your positivity, it’s definitely brightened MY day ❤️

[Rubyjune25 in reply to HikerGirl]

Thank you so much for your kind words, I now have a giant smile spread across my face because of you. To finally be able to say it’s endometriosis causing me this pain, is just the best thing and truly a relief. Thank you for taking the time out of your day to read this and message me! Have a blessed day❤️

[Sammt]

Hi HikerGirl, I am extremely glad for you and I am so thrilled that you said you are grateful to God even in your darkest hour, you are a good example for me. For about 3months now I have been reading post on this platform and this is my first post.. I am happy you got the diagnosis and may God heal all of us in Jesus name. Amen

[Sammt in reply to Sammt]

I meant rubyjune 25

[Rubyjune25 in reply to Sammt]

Thank you, that’s so lovely of you. This platform is incredible even before I was even told I was having surgery for a diagnosis the girls on here were so supportive and listen intensely. If you ever feel like you need to take making a post on here will sure help you! Go with peace🙏❤️

[Sammt in reply to Rubyjune25]

Thank you dear, at the moment I am still waiting for laparoscopy.. my symptoms are feeling sick, muscle and nerves pain, frequent urination, irritating bowel, pain during sex and menstral pain/cramps like everyday sometimes I feel it in my anus.

I was given Cerazette to help control these symptoms but at the moment I am having hard time with my bladder and bowel.

[Rubyjune25 in reply to Sammt]

I’ll be praying for you! The bowel/anus issues are the worst I can totally relate with you there!💙

[Sammt in reply to Rubyjune25]

Thanks a lot! God bless 🙏💖