So I am 35, I have endo and have a really supportive partner, I've had it excised about 11 months back and am now getting to grips with my new "normal".
Recently my parents have taken an interest in how I am; never bothered before. But now seem to think they're the experts; looking up diets to "cure" it, telling me it'll work, telling me all my pain should be gone after my lap ie no symptoms and if I have any then I need to have another lap with a different specialist (mine was a private endo specialist and it was excised), now they've been telling me to just lose weight as "it'll help get rid of all the symptoms". I'm not overweight, I exercise lots as that's stress relief but they see muscle as not required and have an unhealthy view of losing weight - cutting out random things because "it works for them" but it's not balance in my view.
I at the moment still have to plan around my week when I have the worst endo symptoms, so the 7 days around my period. Usually that means we block out that weekend so if I don't feel like doing much I can just mooch around the house. I find stress and socialising tend to make my symptoms worse, so we're trying to be as much stress free as possible. My parent's don't get when I'm planning to visit that it's exhausting having endo days and keeping people company, plus I'll be in a bad mood! We don't catch up with them often so I'm not too bothered about what they see / how they treat me in person, it's more the phone conversations which turn kind of silent because of something "new" they've found / thought up.
I feel like I have to explain everything to them and that I don't accept their help: it's that their help is just not scientifically founded, it's just what they've grabbed off the net. It's so frustrating because they think they know everything! They don't get that this journey is for my partner and I, we value their input if they have done their research first and talked to us about what we actually do.
So what books are there I can give them that are specifically aimed at what they can do / should do / should know? I have the usual 4 or 5 books from amazon but they're long reads. Even an article by a reputable source I can print off.
I don't want to tell them to mind their own business, I'd like to help educate them and talk openly with their judgement of they think they know more.