Endometrioma cyst

[HE12]

Hi, I am new here. My hubby and I have been ttc for 17 months now and we got referred to a fertility clinic. My transvaginal exam found that I have an endometrioma behind my right ovary. I've been told that I will need to see a consultant which could lead to being investigated for endometriosis. Just wondered if anyone has had the same experience and what the outcome was. Thanks.

[Tillyfloss]

hi. Hope you're ok. I only found out about my endometriosis due to fertility issues. We tried for a our second child for a few years and got referred. I had two ops, one emergency and one to treat the endometriosis. In hindsight I did have symptoms but always got told it was normal pain. My specialist on the other hand was very sympathetic about the amount of pain I've been in. After the the last operation in 2017, I had prostap for 6 months ( I have stage 4 deep infiltrated endometriosis, with a full frozen pelvis, they treated what they could). In pursuit of the much wanted second child we went for ivf. The clinic we used were brilliant and did extra scans during taking medication as I had cysts on one of my ovaries. We have been very lucky as it worked first time and I'm 26 weeks with our little miracle and we even have some in frozen. One of my ovaries was reconstructed and they were very surprised it produced eggs at all. My advice would be find out all you can, we got fobbed off alot until they finally had to do emergency surgery and we got some answers but at that point id never had endometriosis mentioned. I hope you get answers and good luck. Xx

[HE12 in reply to Tillyfloss]

Hi, thank you for replying. I'm also trying for a 2nd child too and I fell pregnant with my 1st straight away so makes the whole situation very difficult. Now finding out about the endometrioma makes some sense as to why it hasn't happened yet. I'm glad everything has worked out for you and you will soon have your little bundle of joy. Xx

[Tillyfloss in reply to HE12]

hi. We were the same first one came easily. I did end up having an emergency c- section which is what the specialist thinks made things decline so much. I was told by having a endometrioma it puts you at a stage 3, which means you should be referred to a bsge specialist ( in England, not sure about Scotland I'm afraid). It doesn't necessarily mean you have it alot, they thought mine was mild but with the chocolate cysts after my first operation and normal ct and MRI scan results. After my last surgery the consultant was baffled as the extent of my endometriosis didn't match my scans or even the pain level I should have been experiencing but he did a fantastic job at sorting things out.

I found that once id got over the initial shock of having this condition I've never heard I did understand why we hadn't been successful and it helped a bit although its still very frustrating to go through. I had the tube checks twice and a camera both of which came back clear, the lap was the only thing that actually gave me the diagnosis. Are you in a position you could pay for an initial private appointment with a specialist? We were fortunately able to and the specialist was brilliant with management whilst I waited for the NHS surgery done by himself 😊. Xx

[Hidden]

Hi, I've exactly the same issue. I'm at the stage now where I'm waiting for an MRI scan. I will probably have a laproscopy to remove the endometrioma as I have been trying to conceive for some time. Usually with endometriomas there is endometriosis as the blood has escaped from your womb into your tubes and then into the ovary. Therefore it is likely there is endo going on. Where abouts are you in the UK? For me, it's vital you get the best consultant in this field. Keep in touch with your progress X

[HE12 in reply to Hidden]

Hi thank you for replying. I'm in Scotland how about you? The nurse never mentioned a MRI scan but she did mention a laproscopy or the HSG test but told me to consider the laproscopy as this will detect endometriosis. I need to see the consultant first before any decision is made but I will make sure I don't get fobbed off as I need answers. Xx

[Hidden in reply to HE12]

Hi, my consultant told me the only way to find out if you have endo is by having a laproscopy. I've had the HSG test and it didn't confirm anything except for potential adhesions, however this could be many other things too. That was back in 2017. I should have had an ultrasound with the HSG, so they could check my ovaries, which they didn't do. How big is your endometrioma? I'm in Manchester. Good luck with your appointment. X

[HE12 in reply to Hidden]

The nurse said it's 2.4cm. Have you had your ovaries checked now? Xx

[Hidden in reply to HE12]

Hiya, yes they were checked on my ultrasound during recent fertility tests. They discovered a 7cm endometrioma and 2 smaller cysts on my left ovary. X