So after the cancellation of my gynea referral I was really deflated, but relieved that I still had my gastro appointment booked to get things moving. I feel like all of my gps concerns were dismissed and that he concluded a diagnosis of ibs and a fissure.
I have only been having these bowel problems over the past 2 months. If I had IBS then surely the bowel problems would have come along sooner?
He did go on to say that I should ask for a urology referral given that I have had blood in my urine for 4 months. I just can’t help but think everything can be explained by endo and it being on my bladder and on my bowel.
I am coming to realise that I should not be going to appointments alone, I need a bit of help advocating for myself. Which is silly because I am the deputy manager of a care home and it is my job to advocate for people and make sure that they are listened to, but when it comes to myself I can’t speak up and leave appointments kicking myself for all of the things I didn’t say!
Sorry this post turned into a bit of a rant but this place is my safe space to rant with out annoying my friends and family!
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Vickysponge357
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I'm so sorry for you that's really frustrating! Did he offer any treatment for the fissue? My first one was treated then I had to go back for a camara test to check the healing. Its worrying though because they need to check everything. They used to only diagnose IBS when they had ruled out everything else but now I think it is a fob off! Do you mind me asking if they did an examination and felt the fissure? (They can sometimes but its not pleasant).
My endometriosis was misdiagnosed as IBS for years so hopefully it will all tie in with that. When is your gynae appointment? Sending you a big hug because I'm sure you'll be so fed up today and after years of crapy hospital appointments I know just how it feels (I'd come out of them and cry!) x
He has requested that my gp prescribe an ointment for the fissure. He did do an examination which is very unpleasant! But thinking about it I should have questioned him more on what he said. My gp did an examination 3 weeks ago and said there were no obvious signs of why I was in so much pain with the examination, and the pain was coming from when she touched the inner side (closest bit to my vajayjay). Going back to yesterday when he did the exam the pain was in the same place, he said that he saw a fissure at “5oclock” which actually puts that at the back. And when I had a little examination myself I could then feel what he was talking about and that wasn’t there before. So I’m a bit concerned that a fissure has popped in the last few days and he only saw that and assumed everything was to do with that. But I didn’t clock any of that til I was back at home thinking over everything he had said!
He also went onto day that ibs wasn’t something that they just diagnosed when they couldn’t find anything else, but I was sitting there thinking that I am sure that is not true! I got home and read out all of the ibs symptoms to my partner and we were laughing because he has much more of those symptoms then I do!
My gynea appointment was supposed to be today but they called a few days ago and said they needed to cancel and rebook and I will hear in a month or two
My GP and a locum I saw also couldn't feel anything but the colorectal surgeon thought he did (though he stopped during the examination as it was too painful) the ointment did help it heal so at least I wasn't pouring blood when I went to the loo and could sit down again! Of course the abdominal pain etc continued.
If it's the same ointment I was given the pharmacy should give you strict instructions for applying it. It did give me terrible headaches but at least it worked!
Endo is often misdiagnosed as IBS. The trouble is once you have the IBS label then so much can be just written off to that. I really hope you get your gynae appt soon. Diagnosis is a painful, long, exhausting and frustrating road. X
The dr did say that it can give headaches, and then advised me to stop taking my codeine to avoid constipation. I pointed out to him that wasn’t an option with the pain that I experience on a daily basis and then him telling me that an ointment is going to give headaches!
As frustrating as it is that he has labelled ibs, I am seeing a silver lining that getting an ibs label just seems to be a step in the way to getting diagnosed with endo! It’s just unfortunate that it goes this way for so many woman! Xx
I'm sorry- I remember that headache well did they give you any tips about using gloves or cling film on the finger you apply it with to reduce skin absorption?
I think I told my colleagues my medication was causing some horrible side effects and I remember cancelling social plans cos I felt terrible. I think I got an initial bad head after application and then it subsided a little during the day. I was using it twice a day. It's been a while since I've had it but I'm sure the second time I was really bad and didn't complete the 6wks cos I couldn't deal with it... sorry, that's not much comfort. They only thing I will say is it does work.😔
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bowel endo 
Is it me ? 
Bowel endo and IBS
arguing with myself day in day out, other opinions please! (It's a big long winded) 
Do you think I have endo? I'm worrying? Nobody takes me seriously:-(
