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Endometriosis UK
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Am I the only one?

Evening everyone,

So I have a quiet silly question; do ever suffer from endometriosis symptoms and flare ups even though you're not on your period? Like lower back pain, cramping and all the other stuff.

Thanks in advance xx

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I do, all month long :( xx

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Sorry to hear that..it is really annoying :( xx

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Hello, yes I do every month on my left side especially. Its always a week or so after my period. Xx

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Same here, and sometimes my both sides hurt..hope you feel better soon xx

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Awful isn't it, just part of it I suppose. I take some paracetamol and it settles down after a bit xxx

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Sounds like ovarian pain if it's a week or two after one's period. Do you have ovarian endometriosis?

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YES. Over time, I have basically come to feel like I'm on my period all month, with only a few days being better than others here and there, seemingly no rhyme or reason. Cramping, stabbing pains, low back pain. All of it most days. It's a horrible thing to constantly feel this way.

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Sorry to hear that.. Now I'm sitting with my heating pad on my abdomen also with a stabbing pain on my both sides. 😣

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Hang in there. You are definitely not alone!

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Thank you Summer xx💛

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That's not normal. You need to seek an endo specialist right away. Contact me if you need contact info for one in your area :)

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Hi Sam, you aren’t the only one I do all month too. It is especially bad during ovulation as sometimes it feels like I’m truly on my period. Throughout the month I have like constant throbbing on my right side and use a hot water bottle at work. When I go to the gym my left side kills me. I’m at the point where I have booked an appointment to go to a pain clinic privately to manage the pain until I have a lapscropy.

Codeine tablets 30/500mg has helped with a pain apart from the side effects of feeling drowsy.

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It must be an awful feeling..hope you feel better soon xx

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Hi Sam-05 not a silly question at all. It’s such a shame we all feel like we are being silly or over exaggerating when you have Endometritis. It’s because it’s a hidden disease and we deal with people doubting us all the time. As the pain is now happening outwith your cycle I would make an appointment with your Doctor or gynaecologist. My pain continued outwith my cycle on my left hand side. Turned out my ovary was attached to my bladder. Mine didn’t show up on any scans. Was only when they went to operate that they found all the problems and attached organs. Wish you all the best Sam. Take care. Lv Claire xx

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Hi Clarie,

Yes you are right, some people think that we're just overreacting to our pain..

Actually I saw my gynae two weeks ago and through the transvaginal ultrasound she saw my left ovary attached behind my uterus with a big endometriosis tissue.

I had an MRI scan and waiting for the date of the surgery.

Thanks a lot and best wishes xx💛

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YES! And I’m so glad to see I’m not the only one. Ovulation is normally the worst time for pain for me but I get random pain at any time through the month!

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Sorry to hear that..ovulation time is the worst for me, let alone the period pains.

Best wishes xxx

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Hi Sam, that's not a silly question at all! Its really hard to find info on this b*%stard illness. Yes you can definitely get a flare up outside of your period. I'm on holiday and treated myself to a rare drink (or 4) and have been in pain since xx

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Hi Belles,

I totally agree with you. I hope you feel better hun xx

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I have pain all month long. It is very common with endo for the pain not just to be when you’re on your period 💜

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True that! ❤

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Yes! So I actually never have periods because I am on the mini pill, but I experience the left sided pain around my ovary and kidney through out the month but I always notice that week 1 of my pill packet is usually a much worse week

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I do have have the same pain in the same place and I thought at first that they were my kidneys, but I was wrong then.

Much love xx

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Yes! I've been in constant pain for the past three months! You are definitely not the only one!!! Xx

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I hope your pain gets better soon Maisy! Xx

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Yes all day everyday all month long, which has been the case for 12 months now. And recent diagnosis says im stage 4 endo

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My gynae told me that I might have endo stage 4 as well.

Hoping you feel much better soon xx

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Yes I do, and I've had a hysterectomy so I couldn't even put it down to periods x

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Really sorry to hear that..❤ xx

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Yes.. its there. To be honest I sometimes try to ignore it. But the pain makes me feel its presence. N that pain lead to me being exhausted all the time which makes me cranky and helpless.

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I know that feeling..feeling fatigue all the time..

Best wishes for you Amy xx

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Are you working?

I really don’t know how to cope with the pain

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Actually I'm a student and I find it hard to concentrate on my studies and other daily activities.

I try to ease the pain by pain killers and ginger tea.

Best wishes xx

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Yes definitely. I think it’s sometimes linked to my ovaries releasing eggs during my cycle - but that’s just a theory!

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I guess the ovaries have a big role to that pain.

Much of love xx

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I want to thank you all ladies for your replies and kind words..it really makes me feel that I'm not alone in this, but at the same time it breaks my heart to hear from all from you the pain you all are going through..may you always stay strong and positive.

Much of love and blessings xx❤❤

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I get a "pulling" sensation a few days before ovulation and some discomfort before my period, but it depends more on what I've eaten throughout the month. Eating healthily and leading a healthy, regular, stressless lifestyle can do wonders :)

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Thanks for the advice Stefania! :)

I'll do my best. xx

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Hi. No you are not alone. I have pain nearly everyday. Same pains you say. I feel like my hot water bottles are permanently attached to me. Some days walking around is impossible. So sorry you are suffering but I hate to say this really is an awful illness that mist people don't understand. Hope you feel better.take care. Xx

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Hi Louise,

Sorry for the pain you have to deal with..❤

Thanks a lot and hope you feel better so soon!

Take care of yourself. xx

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Thank you so very much. Xx

Take care of you. Xx

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Yes, all the time xx

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Wish you strength hun xx

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My dear, please please always remember that in this neighbourhood, no question is silly or irrelevant. We all understand.... don’t we, ladies are gentlemen? I didn’t know what it felt like to live without pain until I was put in a state of medical menopause. I really wish you all the very best. 🤗

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Thank you so much for your kind words and wishes LadyPenolope :)

Best wishes for you too xx

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Constantly. I’ve spent the past week on tramadol with heat pads strapped to me- none of which are working today 😩

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Really sorry to hear that ❤ may you find relief soon dear

Hugs xx

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Hi, yes I have pain all day every day. Most days my pain wakes me up at about 3/4 then it’s kinda calms down about 3 in the afternoon. I spend most my days with a heat pad strapped on and a hot water bottle. I am also taking morphine 3-4 times a day and naproxen in between 😢 endo sucks!!

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Oh dear..sorry you have to go through this...it happens with me too; waking up at night because of the pain 😥

I really hope you feel better soon hun, hugs xx❤

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