Feeling like l have to justify how l feel... - Endometriosis UK

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Feeling like l have to justify how l feel, am l going crazy🥺?

Jue23 profile image
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Can l say thank you ladies, l have a read each day and you have helped me, to really understand that lm not going crazy! For months l’ve been complaing of how much pain l’m in in my left side and back. Also have this dragging feeling most of the day & when going to the toilet and my legs go funny not sure how best describe it, how tired l feel, could sleep 💤on a washing line, l keep feeling chilli 😰or hot 🥵& over the last few days l feel sick 🤮It has totally caught up with me & wiped me out I've been off work now since half term. I’ve had many different tablets💊 given by my GP. My concern is lm still no further on there was mention of kidney stones which l though great get sorted & l’ll be back to normal no CT scan clear, l cried, l cried & l cried as l just wanted an answer to how can l feel so ill, tired, sore, uncomfortable, bloating and no energy. I do feel like lm going crazy at times. To be honest l believe its Gynae related if not endometriosis back. I’ve been referred urgently for cameras (8th May) and Gynaecologist (16th April)🙄. I’m doing lots of research to see if l can help myself diet, exercise, also the GP said I’ve lost nearly 2 stone, lm doing my best to piece my medical history so l can ask the questions as l feel I might not have really understood it when l got told l had endo 11yrs ago. Sorry to waffle, but it helps me to read your stories and write how l feel as at times it’s quite lonely and lm sick of been asked what are you symptoms. Then my family saying “well you’ve had a Hysterectomy” “you can’t gave endometriosis” “we’ve never had this in our family” then phone calls everyday have you any news, how you feeling today, you need to get back to work, don’t l know it 😢 just want to get a sign on my head saying don’t ask! So sorry to go on, once again Thanks for reading! xx

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Jue23
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lisaevans2912 profile image
lisaevans2912

oh poor you!! I can relate to all of this, im curruntly signed off work too until after my surgery in 4 weeks, im having a hysterectomy aswell. how did it go for you? i. really worried about it all i keep doing is reading stuff and watching YouTube videos!!! Any advice would be really appreciated, i came out of hospital friday so im feeling really shit atm. sending you hugs

Lisa xxx

Jue23 profile image
Jue23

Hi Lisa I can honestly say the hysterectomy was not a problem p, however I had some repairs done so the recovery took longer. I still have my ovaries of which l wish they had taken. I’ve been signed off for another 2wks, but every day lm checking for cancellations for gynaecologist. Don’t look at anything as it will only play on your mind, just make sure you ask lots of questions as l wish l had, think live been a bit naive. Take care and keep me posted on how you get on. Ju x

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