St Guys Hospital?

[MegVarny]

Has anyone else been treated here for their endo? I have asked to be referred here as it’s a BSGE accredited hospital and just booked in my appointment for April! Didn’t get anywhere at the last hospital so I am hoping I get somewhere with this one. Just wondering if anyone else has been here?

[R0517]

I'm under Guys and have had a really good experience. X

[MegVarny in reply to R0517]

That's great - who have you seen? x

[R0517 in reply to MegVarny]

Mr Holland and the Nurse specialist.. both lovely

[MegVarny]

Yes. I asked my GP to refer me here, got a letter from the NHS to book in the appointment through their website.

[MegVarny]

It says endometriosis yes. I asked to be referred to Doctor Rhymer, think that’s how you spell her name.

[SarahMia227]

I've just been referred to Guys in April too, fingers crossed!

[MegVarny in reply to SarahMia227]

My fingers are crossed for you x

[MegVarny]

I have written a letter ready for the hospital appointment which I will read out, I find this the easiest way to get all of the information across, what do you think? (it is long)...

The reason I have asked to be referred to this hospital is that I have recently been seen by a male specialist at another BSGE hospital and feel completely dismissed by him.

After about 9 years of constant pain, I was diagnosed with endometriosis under a general gynaecologist about five years ago, she lazered the endo off. A year later I went for another op and was told no endo could be seen, despite the amount of pain I was in. they fitted the Mirena Coil and told me that it would help the pain from any hidden endo. It helped for a few months and then the pain came back twice as bad.

I eventually got myself referred to a BSGE centre and was with them for a year. I went to pain management who helped my numbness symptoms but nothing else. I was initially told that my endo could be growing deep and that my Pouch of Douglas felt tender in examination. When it finally came round to discussing an operation with the specialist a year later, I was then told that he probably wouldn’t find endo. I felt extremely confused and dismissed hence asking to be referred to another specialist.

I am fed up, and I am on my 14th year of pain with no answers. The pain is only getting worse and more intense each month. The pain used to only be present during ovulation and when I was on my period, now I suffer with intense pains 3 weeks out of every single month. It has made me feel desperately low and I am taking tramadol. I just want to know where the endo is growing.

My symptoms include:

* Bloating

* Bleeding & pain after sex

* Painful ovulation and periods

* Pain in vagina and bum (very regular now, it sometimes hurts just to walk and sit)

* Lower back pain

* Right sided pain

* Numbness in the right leg (this has subsided since my steroid injections)

* Painful passing of urination and stools, worse when ovulating and on my period

* Stabbing pains up my vagina and bottom

* Appendicitis like pain

* Pain when running at ovulation (to the point of almost passing out)

* Nausea and fatigue

I have tried numerous contraceptive pills, the Mirena coil, change of diet and exercise and none of these really help me. I am not happy trying zoladex as extra hormones give me depression and anxiety. I also fear gaining weight (I have an eating disorder).

I just really want to see someone who has empathy, and actually listens to me. I am so upset about how I have been treated and dismissed for the past thirteen years and just want answers.