How do you deal with your pain? Working? ... - Endometriosis UK

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How do you deal with your pain? Working? Help me.

AltsweetCX
AltsweetCX
11 Replies

I'm a 24yr with Endo, was stage 4 when I went for my surgery, now have Mirena IUD in. I also take A long lasting pain killer (doesn't do much honestly) and when things get really bad I have to take codeine (knocks me out silly). I have the problem that I'm allergic go paracetamol, which makes my options limited. I wondered what options people use for pain or how to cope with it? Or continue working? I'm Struggling with keeping my job with this pain!

11 Replies
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Lindle

Are you being treated at a specialist endo centre and was the endo fully excised with a team of surgeons involved?

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AltsweetCX
AltsweetCX
in reply to Lindle

I was treated on the NHS in the UK by a Endo specialist, I see her every 6 or so months.

And they got as much of the Endo out as possible to me knowledge.

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Lindle
Lindle
in reply to AltsweetCX

Stage 4 must only be treated in a specialist endo centre. Are you in England or one of the devolved boards?

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AltsweetCX
AltsweetCX
in reply to Lindle

Wales, I wasn't aware there were specialised Endo clinics to be honest!

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Lindle
Lindle
in reply to AltsweetCX

See the NICE guideline (1.1.4 and 1.4.2). This applies to Wales as well as England. You have a centre at Cardiff but women can also get across the border depending where you are.

nice.org.uk/guidance/ng73/r...

See also section 3 of the RCOG Standards - women everywhere in the UK must have equal access to centres.

rcog.org.uk/en/guidelines-r...

and list of centres

bsge.org.uk/centre/

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Myfanwy21

Hello, did you have your op in the Heath in Cardiff? There are 3 endo specialists there and they're the only accredited specialists in Wales. Hope you got to see one of them!

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kerr77a
kerr77a
in reply to Myfanwy21

What are the name of the specialist in Wales? Please

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livvi_livvi

I always find taking my wheat bag or Tens machine to work helps. Keep on top of pain killers throughout. I have a very supportive and understanding employer where I currently work reduced hours due to my pain. I work in a call centre as a supervisor so have to take frequent breaks and walk around.

Have you spoken to your employer?

Xxx

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AltsweetCX

Yes I've spoke to my employer and they are really supportive but only so much then can do.

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SarahMia227

I use a hot water bottle and peppermint tea for pain management/bloating (one and the same for me)! I also used to take a walk when the pain got bad. I was very lucky that I had a supportive employer (I'm using the past tense because I left my job in June 2018 unrelated to endo to go back to university), who let me go home when I needed and change my hours - so I still got the work done, but if I was having a flare up I could go home, calm it down and then finish later from home. I understand how hard it can be though - after I left my job, I did an internship in the city and I kept my endo hidden with peppermint tea, painkillers and stick on heat patches, which kept it at bay. Not sure it was a long term solution though! xx

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AltsweetCX

Thank you for the reply! I'm defiantly going to look into peppermint tea!

Even just to help the flare ups!

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