Advice needed

[Ambs2018]

Hello,

I’m really struggling at the moment symptom wise and I just feel like if I wrote down every symptom and showed it to the doctors they’d think I’m crazy.. I’m still struggling to get a diagnoses of endo but after my last op in August when I had my appendix removed they found bowel adhesions and scar tissue so gynaecology are thinking it could still be that. Do you ever just feel like you are not supported and can’t truly show how you feeling as I always feel terrible?

What I need help with today is should I be worried about these symptoms?

My bones feel extremely weak like they’ll break.

Brain fog/memory loss.

Extreme tiredness.

Lower back pressure.

Shoulder pain.

Extreme mood swings.

Feel like I have very little bladder control.

Thank you and sorry for the massive post!

[AllthatGlitters]

Hi ambs I have these symptoms too. It’s normal for Endometriosis however it takes its toll on daily life as your body just feels like its letting you down. I would take a list of your symptoms to the doctor, who cares if they think you are crazy, it’s your health and they are paid very well for the job they do. You may even get a positive outcome.

I often take notes in with me when I see the GP and I am always taken seriously, it’s mainly because I am really forgetful.

It’s funny you should say about the appendix as I was admitted to hospital to get them out but in the end they decided that I had a gynae issue (a few months ahead after lots of tests).

Book your GP appointment and let us know how you get on x

[sammantha28 in reply to AllthatGlitters]

This caught my attention. I have not been diagnosed with endometriosis. However, I do have Hashimoto's disease. My brain fog and memory loss has changed the person I am. I'm very interested in this to see how the two diseases correlate. Maybe that can bring us to a better understanding of it, and maybe even a way to treat it. I'm in the US, and it's also very difficult to get doctors to listen to you here. Most are actually told they need mood or behavioral drugs for years before they actually get a thyroid diagnoses. I've joined a few FB support groups for my disease and found that brain fog and memory loss is almost always a symptom for everyone with Hashi's (among many other symptoms). I've also noticed that most with Hashi's also have at least one other disease/syndrome, and PCOS is one. Might be worth looking into more.