Fed up. 😔😔😔

[Spemzy]

Hey my name is spemzy

I have endo my left ovaries and in my pouch Douglas , mirena coil, I am on prostap 3 injection too and I had 2 lap too.

I haven't been unwell for nearly 3 week with a big flare up and an urine / kidney infection and very very sore. 😔😔

My docs ask me if have a endometriosis nurse to talk to and I was just wonderingif anyone else have you and how do you know thathat if you got.

Thank you. Xx

[AllthatGlitters]

Hello gosh that’s a long spell to not be feeling well - I really hope it improves for you & you feel better soon.

I don’t have an Endo nurse - never heard of this tbh, I assume we have them in the NHS awards once admitted but that’s it?

Maybe someone else can let us know?

x

[Spemzy in reply to AllthatGlitters]

It would be good to know if people have them x

[AllthatGlitters in reply to Spemzy]

Yes let’s see what others say?

[Lexie26]

I don't have one either but from what I've read it looks like endometriosis nurses exist only in specialist endometriosis clinics so my guess is that you wouldn't have one unless you were being seen under one of those clinics.