Help. Seeing consultant Tuesday what shall I ask?

[ElizabethAl]

Hi I am new here.

I have had painful periods since I started my periods. To the point where I have on occasion been lying down on the floor screaming from pain and vomited.

I am now 39 and earlier this year I started getting increasing pains between my periods and I wanted once and for all get to the bottom of this. I have read about endometriosis and feels it fits my symptoms. I have had friends and family who has read about endometriosis and have said they also think i should be investigated.

As usual the GP said it was normal period pains but after being insistent I got a ultrasound scan 4-5 months ago. It showed a 6 cm fybriod in my uterus and a 3.5 cm simple cyst on my left ovary.

The GP told me this over the phone and asked me what i wanted to do. I said I didnt know even what these things was but that I wanted to be free of pain. I got referred to a gynacologist in a healthcentre. It was a 6 week wait and when i got there she didnt know why i was there and did not have the scan result. I had a picture of them in my phone and said I would like to have children in future but the most important thing for me is to be functional person again.

So she wanted to put me on injections to put me in the menopause, I didnt ask anymore questions as a was quite upset no scan had been sent there. She said it would shrink my fybroid and that my cyst probably was no problem really. She didnt examine me at all.

Afterwards I googled this and realised its not a solution for the constant pain I am in went back to the GP i saw a different GP since mine wasn't available. I told him I wasn't sure about the injections.

He suggested to go on the pill for symptoms but since I have history of pulmonary embolism (blood clot in my lungs) and cancer I said I didn't want to. He thought I should have a hysterectomy and have refereed me to endometriosis clinic at the hospital its been a nine week wait for this and its on Tuesday.

I think i should ask for a labroscopy. My work have told me to get this sorted ASAP in their words and I don’t know what to do and feel very guilty for my constant period pains. Its ruining my work and private life as I am constantly in bed with pain.

Any advice to what I should ask consultant on Tuesday (sorry for my english i am from Sweden originally)

I really struggling with this! Any advice is helpful!

[AllthatGlitters]

Hello reading your post I thought a hysterectomy is always a last resort, well that’s what I have been told. If it were me I would ask for a laparoscopy first and see what they find. A hysterectomy is a big operation.

Your work can’t tell you get it sorted out ASAP as that’s all good and well however NHS waiting times do not allow for this. Have they referred you on to occupational health for an assessment? They should be supporting you & should be able to make adjustments for you to enable you to stay in employment, such as working from home when you are feeling ill or reducing your hours. Whatever you feel suits your own personal circumstances.

I am 37 and have been told that with age my symptoms have become worse.

Keep going and pushing for what you want, it’s your body, it’s you who has to deal with this on a daily basis, it’s you who is in pain. You have rights and you can refuse treatment and also ask for the treatments you want from your GP/hospital.

PM if you would like to chat.

X