Gutted 😩

[Natalie221]

So looks like I’ll be waiting a long time before my 2nd laparoscopy the joys of diabetes aswell as endo. Hba1c of 92 and been told is has to be 70 before I can have my op little bit devestated but I’ve gone this long in pain so just have to take each day as it comes, if anyone has any suggestions for pain relief would be grateful hot water bottle has been making pain worse last couple of months 😰 x

[NW248]

For pain management I'd suggest that you look into accupunture magnets and use them on the points LI4, Lv3, Sp6, Sp9 and Bl60. You can look these up on the internet. (There are two different ways of numbering the bladder channel points, BL60 is the one on the ankle). Bl60 and LI4 can't be used during pregnancy. The magnets just stick on, they don't go into the skin and they can be re-used if you clean them and stick them on micropore tape.

I would also suggest that you slowly reduce your carbs and use fat for energy instead. It will help your diabetes but also cutting out carbs (you'll need to do it gradually because of your diabetes) will kill off Candida which often goes hand in hand with endometrosis because they help each other along. I did a post on the subject a while back so if you search for Candida you should find it.

[Natalie221 in reply to NW248]

Thankyou for your reply, will definitely try the magnets!! I’ve already cut a lot of carbs I’m down to between 100-150 a day xx

[Cupcake1617]

Not sure what meds you’re taking but there are quite a few options your Doctors should be able to help you with. Non medicine I use tiger balm, okay it smells a little (I quite like it 😂) but it’s so so handy when you’re out and about and need something quickly. I put on a disposable plastic glove so the smell doesn’t linger on my hands too! X

[Natalie221 in reply to Cupcake1617]

Oh I’ll have to try it! I’ve tried Mefenamic acid and Tranexamic acid in the past but they make me feel really sick I’ll definitely try tiger balm tho thankyou xx

[katie_o]

Hi Natalie

I’ve never had a laparoscopy, I was diagnosed by ultrasound and MRI, endometriosis all over the bowel, chocolate cysts pulling my rectum out of shape (going to the loo is pure hell), rectovaginal fistula and an ovarian cysts so big they’ve never seen my left ovary, the cyst is bigger than my uterus.

I’m a type 2 diabetic and over the last couple of years my hba1c has come back higher and higher each time even though my Metformin has been increased and I’ve had to add another tablet for it too.

When I last saw my gp he said that they may not do my surgery because of this but I’m wondering if the endometriosis is having an effect on my pancreas and that’s messing my blood sugar.

The reason behind my thinking being that apart from the endo pain and toilet struggles my biggest problem is a big bulge just below my left breast, it fills and blows up when I haven’t been to the loo in ages/weeks and that’s where your pancreas and intestines are.

I seriously hope that it doesn’t delay my surgery or I will scream- I’m having a full hysterectomy and endo removal but they are waiting on my latest mri report (was done in May) as they only have the images to decide when I need more colorectal surgery and a stoma.

I hope that you are soon sorted, they will have to do something for you.

Pain relief- have you had the morphine patch?

Keep me posted!

Cath xx

[Natalie221 in reply to katie_o]

Hey thanks for replying! That sounds awful I’m so sorry your having such a bad time and I really do hope u manage to get sorted soon!! My last Hba1c was higher than the one before I was mortified but tbh I am struggling with taking insulin so in a way it’s my own fault aswell as mental health all 3 aren’t helping at all right now. I’m type 1 tbh I’m 24 next week and only got diagnosed 2 years ago and in all honesty I still don’t understand half of it! I know that weight loss can lower Hba1c and eating better but I just binge on chocolate because I give up easily with it, plus pain makes my sugars a lot worse 🙈 I had first lap in 2014 no one believed I had endo but a small amount was found in pod symptom free up until the last year and a half irregular periods etc I had MRI but nothing showed but I refused the dye because of my anxiety hahaha I’m just so fed up with it all!! Make sure you keep me posted too take care xx

[katie_o]

I will keep you updated Natalie- to be honest I’d try (I know it’s hard) and give up the sugar/chocolate for a while. Not only will it lower your hba1c but I really think that the endo pain eased when I stopped eating it, I’m not saying it stopped but it did feel easier.

Give it a go- you’re worth so much more than a bit of sugar! Xx

Ps I’m 50 (arghhhh) later this year with 3 children 25-29 so the hysterectomy itself doesn’t worry me the same as it would for someone younger xx

[Natalie221 in reply to katie_o]

I will try it’s just so annoying when you’ve taken insulin an you didn’t take the right amount an your sugars high anyway so I get all moody an down a dairy milk hahahaha yeah at least you’ve had your children hopefully you can find a way to get your Hba1c down too so you can have your surgery! Fingers crossed for us both 😂😬🤞🏻 Xxx