Have you had a bad experience with lupron... - Endometriosis UK

Endometriosis UK

70,734 members52,159 posts

Have you had a bad experience with lupron or something to to put your body into a chemical menopause?

chezzle01 profile image
7 Replies

I run a group called lupron warriors on facebook please message me if you have had or are thinking of having lupron also known as zoladex, prostap, gonapeptyl, relugolix or anything that will put your body into a chemical menopause . It has ruined my life I'm now disabled. Theres over 60,000 people suffering around the world please don't have the injections or pill because it comes in pill form now too Xxx

Written by
chezzle01 profile image
chezzle01
To view profiles and participate in discussions please or .
Read more about...
7 Replies
BethanyAnn profile image
BethanyAnn

Hi Chezzle01,

I’ve just had a consultation and my doctor wants me to try the medication that puts me into early menopause for 4 months to see if all my pains from Endometriosis go away. If the pains go away then he believes it indicates that my Endometriosis has returned and I may need surgery again.

He didn’t tell me the name of the medication though and he just asked me to research it but I don’t know what I’m researching. Is this the medication you’re talking about? If so, what happened when you took it? If you don’t mind me asking. Thanks x

Elecktra profile image
Elecktra

Hi,

I've just refused to use Zoaldex as recommended by my consultant to shrink my fibroid. I did a lot of research into this drug and the side effects were way too scary for me. I am now waiting to see if they will give me the go ahead for a hysterectomy. I'm nearly 50 and the fibroid is causing the most debilitating, heavy and painful periods.

in reply to Elecktra

I am in the same situation as you and start zoladex in September.

Hysterectomy does not cure endo and there a lot of women who have had great success with zoladex.

A hysterectomy is huge and you and I are in a very weak state due to the endo being so severe.

Personally, I don't have the strength for major surgery.

Please do not read the scare stories about zoladex as all medication has side effects.

You might have 6 months of relief on zoladex then be able to take cerazette after.

I am going to give it a go for a month and if I don't like it not continue.

I wish you all the best as this is a truly awful condition.

Stay strong!

How are you disabled after using zoladex?

How long were you taking this?

This comment will really scare people with severe end looking for treatment options.

Some people have great success with zoladex and have 6 months of normal life.

Not every drug works for everyone and all drugs have side effects.

There are so many people with no medical background criticising drugs that could help a lot of people.

Xuyalee23 profile image
Xuyalee23

hi chezzle01, i would like to join your group

Sjma profile image
Sjma

I was put on prostap August 2019 for a huge fibroid and a complete hysterectomy. I had 0nce a month dose twice. Then two big doses lasting three months till next one. Had hysterectomy back in May 2020. Im absolutely stiff in back hips and shoulders and knees. It gets me at night turning over in bed. I really feel for you. I hope you get sorted very soon. X

You may also like...

Have you had prostap , zoladex or lupron injections and are having a bad experience with it?

Have you had Lupron prostap , zoladex injections and have become very ill from it or had a bad...

Have you had a hysterectomy and did you keep/not keep your ovaries?

good to listen to others experiences, so please if you have had a hyst with or without ovary removal

Anyone had a chemical menopause to diagnose Endo?

scans (ultra/ct) I have had. I a bit weary about the sound of a chemical menopause, but he said...

Is it normal to have pain in multiple places around your body?

I have recently been feeling pain in my shoulders/neck/arms/chest/pelvis. Now even though I have...

Anyone had bad experience with Cerazette but good experience with another mini pill?

Any advice on mini pills that have worked for you after bad experience or heavy bleeding from...