Prostap not working?? (Fibroids) - Endometriosis UK

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Prostap not working?? (Fibroids)

Serendib5
Serendib5

Hi Ladies,

I am so relieved to have found this group, I have been feeling lost and terrified for months now. I'm new here so please forgive the wordiness. Hope everyone is having as good a day as possible and that it gets better and better!!

Really really would like to hear your experiences - I have a 2cm submucosal uterine fibroid (hanging into the womb) which has been wreaking havoc on my life since it was discovered 4-5 months ago. My gyn put me on Synarel nasal spray to induce menopause (he was very convinced the periods would stop), periods went mental and it didn't work. He then have me a 1m Prostap injection and I had two blissful weeks of no bleeding. Then like clockwork, the period started again (with this fibroid it now tends to last around 2 weeks or more, with the heavy bleeding confined to the first week but continuous bleeds and cramps on other days). During that period I was given the 3m injection. The period hasn't ended and I am giving up all hope of this chemcially induced menopause actually happening. I feel like a freak and am really scared there is something very wrong if there is bleeding despite the prostap. I wanted to know if anyone else has had this experience while on Prostap for fibroids?

This whole experience of the fibroid is like living in a nightmare, which is bad enough, but the fact that the medication which seems to work for most (my dr said again I shouldn't have any further bleeding) is not working for me is making me spiral into an incredible depression or sadness or something which I am so tired of feeling.

Wish all of you all the very best of health xxx

2 Replies
oldestnewest

Hi Serendib5,

Welcome to Endometriosis UK's forum!

If you need someone to talk to, we do have a network of support services that are available to anybody affected by endometriosis. Our free helpline (0808 808 2227 )is run by volunteers who have personal experience of endometriosis. The helpline is open most days – the times it is open can be found here: endometriosis-uk.org/suppor...

You may also find our support groups useful as a place where you can discuss endometriosis and the issues you are facing with other sufferers. Please visit: endometriosis-uk.org/suppor... to find out if there is one in your local area. If you find there is not a face to face support group in your local area, we have an online support group.

We also have lot's of information on our website: endometriosis-uk.org/inform...

Best Wishes

M Mary

Endometriosis UK

Volunteer Moderator

Hi. You sound so worried and frightened. It is so worrying but you need to get to see a specialist endo consultant! Research and find one. I saw mr David Rowlands in the Wirral. I paid for a consultation and then went on his nhs list. You seem to be getting fobbed off. I couldn’t take the injections. After 3 I felt terrible. All my body ached to the core, I couldn’t think straight and I was extremely tired. As I’ve said in previous posts I researched about diet and completely changed mine and have been pain free for 4 years. I started my endo journey 9 years ago with fibroids. They were the easy bit. My adhesions got so bad I was inoperable, and had a 8cm chocolate cyst on my other ovary! But now no pain. Find someone who knows what they’re talking about! Don’t panic. Take control and get your life back xx

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