I am so relieved to have found this group, I have been feeling lost and terrified for months now. I'm new here so please forgive the wordiness. Hope everyone is having as good a day as possible and that it gets better and better!!
Really really would like to hear your experiences - I have a 2cm submucosal uterine fibroid (hanging into the womb) which has been wreaking havoc on my life since it was discovered 4-5 months ago. My gyn put me on Synarel nasal spray to induce menopause (he was very convinced the periods would stop), periods went mental and it didn't work. He then have me a 1m Prostap injection and I had two blissful weeks of no bleeding. Then like clockwork, the period started again (with this fibroid it now tends to last around 2 weeks or more, with the heavy bleeding confined to the first week but continuous bleeds and cramps on other days). During that period I was given the 3m injection. The period hasn't ended and I am giving up all hope of this chemcially induced menopause actually happening. I feel like a freak and am really scared there is something very wrong if there is bleeding despite the prostap. I wanted to know if anyone else has had this experience while on Prostap for fibroids?
This whole experience of the fibroid is like living in a nightmare, which is bad enough, but the fact that the medication which seems to work for most (my dr said again I shouldn't have any further bleeding) is not working for me is making me spiral into an incredible depression or sadness or something which I am so tired of feeling.
Wish all of you all the very best of health xxx
Written by
Serendib5
To view profiles and participate in discussions please or .
If you need someone to talk to, we do have a network of support services that are available to anybody affected by endometriosis. Our free helpline (0808 808 2227 )is run by volunteers who have personal experience of endometriosis. The helpline is open most days – the times it is open can be found here: endometriosis-uk.org/suppor...
You may also find our support groups useful as a place where you can discuss endometriosis and the issues you are facing with other sufferers. Please visit: endometriosis-uk.org/suppor... to find out if there is one in your local area. If you find there is not a face to face support group in your local area, we have an online support group.
Hi. You sound so worried and frightened. It is so worrying but you need to get to see a specialist endo consultant! Research and find one. I saw mr David Rowlands in the Wirral. I paid for a consultation and then went on his nhs list. You seem to be getting fobbed off. I couldn’t take the injections. After 3 I felt terrible. All my body ached to the core, I couldn’t think straight and I was extremely tired. As I’ve said in previous posts I researched about diet and completely changed mine and have been pain free for 4 years. I started my endo journey 9 years ago with fibroids. They were the easy bit. My adhesions got so bad I was inoperable, and had a 8cm chocolate cyst on my other ovary! But now no pain. Find someone who knows what they’re talking about! Don’t panic. Take control and get your life back xx
Hello, I know that this is an old message but I am in the same position and am wondering how you managed. I'm also at the end of my tether. I only have fibroids not endo but it is destroying my life and I was praying the prostap would stop the bleeding and so far it is not.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Prostap longer than 6 months?
On Prostap but worried about starting Tibolone
How long does it take for Prostap to work its way out of your system?
Prostap
Laparoscopy and Prostap
