Diagnosing endometriosis

[Hazel173]

Hi, so I had a lap in november last year which confirmed I had endometriosis although all the doctors said it was very unlikely due to scans being clear. They only did the lap because I pushed for it knowing something wasnt right with my body. It was confirmed to be stage 1 in a couple of areas. Since the lap the pain and symptoms have not changed, ive not had a period in 5 months and there is no way im pregnant or on birth control. Im in pain every day but no one will believe me, the doctors just keep saying im lying and addicted to codeine. The agreed to give me an MRI but said it will come back clear as it unlikely ive ever had endometriosis. I dont understand though as my previous surgon (who is on maternity leave or I would speak to her) diagnosed me as having it. I was also under the impression that the only was to accurately diagnose was through surgery so will the MRI not just come back showing nothing anyway? I dont know what to do because noone will believe me and the keep brushing me off saying the pain killers are my problem. My main symptoms are pain all the time, very bad bloating, feeling sick, unable to eat, I pee all the time and am up constantly through the night, there is blood in my stools, very irregular period (none for the last 5 months and no birth control) when I do get a period it is very heavy with clots, I get bad diarrhoea, I get hot flushes, I struggle to sleep due to pain, I am grumpy all the time, my acne is bad (im 25). Does anyone have any idea of what might be happening or what I should do or how I can get the doctors to believe me and stop thinking im a drug addict?

Thank you so much!

[Holleymuzz]

Hi 👋🏻

I have been through a similar experience. But I was diagnosed nov’16

It’s taken me two years to get to proper endometriosis clinic. I have surgery in 9 days. My symptoms are almost exactly the same as you. I’m afraid we have to be our own advocate, if your gp isn’t listening then change gp. Research proper gyneas that specialise in endometriosis and if they are Nhs as to be referred. You can request the notes and pictures from your previous surgery for your records when you go to doctors next. Don’t give up please. Keep going x

[kaloust]

Oh God, what a nightmare. Agree with the previous reply - I'd get a new GP. This link covers what your doctor should be doing: pathways.nice.org.uk/pathwa...

Would it help to take someone to the next appointment with you? I've been diagnosed now, and I think they now believe me when I talk about my symptoms, but before that point I would be pretty much in tears in the waiting room before appointments knowing that I was very likely about to be disbelieved and dismissed... again. If you're like that too, maybe it would help to take someone assertive with you who can push the doctor to do the right thing?