Defeated.: So ive just had my follow-up... - Endometriosis UK

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Defeated.

Heloo85 profile image
Heloo85
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So ive just had my follow-up with my consultant and theyve just washed their hands of me 😂. Because my endo doesnt respond to anything, they are no longer interested. Its now about managing my symptoms for rest of my life. They will only repeat surgery if my Endometrioma goes over 5cm. Currently, at last scan, was just under 2cm. They wont give me a hyster cuz Zoladex does nothing. They dont want to reoperate because 1) it doesnt work. 2) risks. 3) future complications.. unless they have no choice. So here i am. My endo defeated even the best of Drs. And to top it all off, its attacking the nerves in my pelvic reason causing pain and gait changes in my legs! The joys of chronic illnesses eh?

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Heloo85
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MMary-Moderator profile image
MMary-Moderator

Hello Heloo85. I'm so sorry to hear you are feeling really down today. Endometriosis UK supports women with endometriosis in a variety of ways, including a Helpline where you can speak to a volunteer who has experience of endometriosis. You can find out more about the Helpline and our other support services on our website endometriosis-uk.org/get-su...

I hope you are feeling better soon

M Mary

Volunteer Moderator

Endometriosis UK

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