What now? Fighting a losing battle...

[Abbey5924]

Hi all, hope you are well.

Just thought I'd reach out for some advice or similar experiences. Also a bit of a vent so apologise in advance, this is going to be a novel 😂.

I'm 19 and currently on the Levlen pill.

I have been dealing with chronic right side pain for almost 3 years. Higher vaginal/cervical and higher rectal pain alongside severe menstrual pain since first starting my periods at age 11.

Painful cycles are Joyously part of my families medical history so I never thought anything of it. Though when I started having my side pains with no evidence of anything really, I ended up doing all the ultrasounds, blood, urine, pregnancy and swab tests. (I'm sure most of you can relate, some even more so.) with no answers as the pathology centre quickly becoming my second home.

Appointment after appoinment with docters either sending me home with a box of advil or saying to just rest.(or throw some random script for something expensive that didn't work) I finally found a docter that took me seriously and was refurred to a gynae. She was lovely and thought as an option before sugery was to try the pill.

I have been on levlen for 5 months now continuously without bleeding as directed without spotting or anything of the kind. Though the bleeding was all that it stopped.

My cycles have continued on without it, monthly period pain, ovulation pain, PMS and skin breakouts. All on time even without an actual period.

I received my Laproscopy a week ago on 26th of June with my gynae telling me she was doubtful she would find anything because the pill had done nothing ( which I thought was odd as I heard it was a common occurrence) and would only have to make the 2 incisions.

Almost 2 hours later I woke up in horrific pain from the gas, though the staff were gorgeous and did everything they could do to drug me up and make me comfortable 😂. I asked my recovery nurse how it went and she told me they had found Endo on the outside of my uterus, behind my cervix and on my lower bowel and that they ended up making extra incisions. Though I was feeling pretty crappy at the time I was ecstatic. Finally, something good.

Though only a weeks gone by I've lost hope. My chronic side pain is unchanged along with everything else. From 3 weeks leading to surgery I never slept of a night for what I believe to be a hormone in balance from the pill. ( it's happened to me before with a different medication). Nurses gave me oxygen because I looked so shocking, they were shocked themselves when I told them I'd come in like that.

A few days after, once the anaesthetic finally wore off we are straight back to not sleeping. It's currently 3am here so thought I'd vent. I'm not on my phone of a night(unless its been over 3 hours otherwise i start stressing out and start losing my marbles), I don't sleep through the day, and I have nothing with caffeine or anything along those lines either.

I'm hoping that once everything internally calms down things will get better with my pain but as of now I'm finding it hard to believe.

What's next for me?

What else can I do?

There's only so many options I have at 19...

Its all honesly ruined and ruining my life. School went downhill quickly, cant find work like this in a labour driven region, even in general.

My mental health has taken a dive alongside it all. It's all to much really.

Damn this really did turn into a sappy novel, sorry everyone, just sort of needed somewhere to put this and honestly everyone on here has experienced so much. Though it's horrible to say I'm glad there are others out there dealing with it all aswell.

Again apologies for the sap.

If anyone has and advice or experiences they'd like to share please comment I'd love to heard them.

Also if you have any questions for me, and I mean anything! Drop them in the comments aswell, I'm tough and tend to overshare so go for it😂!

Thank you all xxxxx

-Abbey

[princessk09]

Hey, I’m 19 and waiting for my lap at the end of the month. I first went doctors when I was 18 and they used to throw different painkillers at me and birth control pills and nothing worked. Even now a hot water bottle does nothing 🙄

I can totally relate to some things as my mental health can take a hit with the chronic pain and stops my everyday life at times especially during my period, I struggle to walk.

You’re still recovering from your lap so just give things a bit more time, your organs have be prodded and cut etc. It can up to 3 months sometimes longer to heal internally.

If you ever need to talk to someone, you can always PM me ❤️

I’m petrified for my first ever surgery haha and I’m scared nothing will be found but I have signs of endo and my period pain can’t be fixed with tablets or heat etc xxx

[Abbey5924 in reply to princessk09]

Hi! Thanks for replying.

Can relate to all of those, it's shocking really. Have tried it all, doc even tried nerve blockers as a resort. $40 down the drain though.....

I just have so many health issues iv just become impatient. Just so over not getting anywhere in life.

It's completly fine to be nervous about it all. Iv had anxiety since I was tiny so I completly understand.

Up until I actually got to the hospital I was only worried about if they were going to find anything, and how sore I would be afterwards. Once I got to my room though I locked up so bad.

When my anethatist (definitely spelt that wrong) came to introduce himself I let him know how nervous I was and girl honestly he was gorgeous he bumped my up on the order list and gave me something to calm me down. It's a scary thing to go through and though it's even terrifying to say so let the nurses know, they are there for you. The worst u know but hear me out.

Thank you for that and same goes for you! I'm honestly an open book and know for sharing tmi so if you ever have questions or even just vent let know!