I’ve had enough of this

[Liv_thorne]

So, I’m new here, endometriosis has me everyday crying and in pain, I know that’s what a lot of people experience but it doesn’t make it any better, it took me years to get diagnosed, as they always presumed my pain was to do with diet and eating etc... I’ve been in hospital with it, I’ve had ultrasounds and everything you can imagine, anyway, I’m rambling, I’m on the contraceptive injection and they put me on the pill for a while, but I couldn’t stand the weight gain, the increased pain and the mood swings, so I’ve stopped that, having endometriosis has made me feel quite helpless and I just would like some support because no one understands me in my friends and family. Thanks in advance

[princessk09]

Hey, I’m waiting for my first lap but my doctors and gynae think I have endo.

I struggle with my family not being understanding but this forum is amazing and full of supportive women who go through the same things as us.

Have you tried showing your friends and family about endometriosis online? Or even read people’s stories on here?

[TT123 in reply to princessk09]

Good Luck with your Lap, I hope you manage to get an apt soon! I agree its very difficult for people to understand but like you suggested sometimes friends and families need to hear other peoples stories to fully understand and empathise.

[Amieeellismay]

I no that feeling in pain all time crying like a daily routine totally understand sending big hugs.. xxx

[TT123 in reply to Amieeellismay]

Sorry to hear this, sending you hugs too! Have you been prescribed pain relief?

[emmaquinny]

You need to see your gp and tell them the impact it is having on you, get some better pain relief. I’m on pregabalin now, something I never heard of, there are lots of others to try too, and while I am still in pain it’s controlling it enough to help me claw back abit of life, even just the housework! Don’t suffer in silence. 💛

[Rachael2727]

I no that feeling😭x

[Emmyeve]

Hey, one from one endo sufferer to another, try altering your diet. The endo diet has changed my life xx

[brizzlebird]

It's so hard but you are not alone in the this. I have started a FB group specifically for Endo and mental health if you would like to join, all are welcome x

facebook.com/groups/2158766...

[Lynne_support Partner Endometriosis UK]

Hi Liv_thorne. I'm sorry to hear you are struggling at the moment. We have a number of support services for women who are struggling with their diagnosis. You can call our Helpline on 0808 808 2227 and speak to one of our volunteers to get some support and information, the opening hours are on our website endometriosis-uk.org/helpline.

We also have support groups all around the country, to see if there is one near you, take a look at the 'support groups' page on the website endometriosis-uk.org/suppor....

Best wishes

Lynne - Endometriosis UK

[Stm252]

I've struggled since 16 and I am 39 now. I completely feel your pain. It's horrible. I have had 8 surgeries to manage the Endo hell. What I have found helpful after so many years is exercise (even a little!). Gabapentin has also been helpful. I also notice that when I don't sleep everything is worse. I don't really have regular periods but when ever I did have a peruod my life was a nightmare for weeks. I would recommend trying not to have a period if that works for your body. That has helped a lot both with the Endo and migraines. Let me know if you want to talk offline via the chat on here. I have had a lot of experience with Endo and then IVF and pregnancy and all of it. Happy to talk.