Blood test for Endo

[Lozza4444]

Hi All

Big hugs to all of you having a tough day.

I know that the only way to diagnose Endonia by laparoscopy, but do you know if blood test results can show anything abnormal as an indication?

Any advice appreciated.

Many thanks

Xx

[squirt]

Hi the most effective diagnosis is a laparoscopy I think that in some cases inflammatory markers may show that there is some kind of inflammation in your system (blood test) however it wouldn't be pin pointed for endo if this makes sense x

[Lozza4444 in reply to squirt]

Hi Squirt

Good to know and yes that does make sense.

Thank you for replying

X

[Sez73]

I had a Ca125 test (tumour marker test which they can use to test for ovarian cancer) this came back elevated but not massively high, an elevated level can point to endometriosis. This was what eventually led to me finally getting a laparoscopy and diagnosis, after suffering 15+ years of horrible symptoms & terrible chronic fatigue. I had a lap & they uncovered over 20 years worth of severe stage IV Endometriosis. But, a laparoscopy is obviously the gold standard test. X

[Lozza4444 in reply to Sez73]

It’s interesting to know. I have not been diagnosed but get my blood test results on Monday. My symptoms seem to match Endo.

You poor thing. It’s just so unfair that you had to go through all of that for so long before you got a diagnosis. Have you had the endometriosis removed yet?x

[Sez73 in reply to Lozza4444]

It was an absolute battle and a half to get GPs to believe me. It took me moving to Australia before a doctor finally sat up and took notice and said 15 years of crippling fatigue wasn’t normal. My UK GP said the pain was all in my head.

I’ve had extensive surgeries over last 5 yrs to remove the Endo but have a v aggressive form which keeps returning sadly. When I had my first lap I was days away from losing a kidney yet the UK GP would still insist there was nothing wrong with me!

I had a very radical surgery in 2015 which helped a lot but the Endo is now returning again and I have adenomyosis too. Still trying to have a family so don’t take any medication which is the worst thing possible but desperate to try and have a baby. Soon to give up fight and probably have to have a hysterectomy as I’m exhausted now and it’s taken over my life.

If you have any problems with hopeless GPs like I did, insist on a referral to a BSGE centre which are more specialised in Endo. A laparoscopy is the best way forward to get a concrete diagnosis though as blood tests will never be that accurate with Endo. I just mentioned the Ca125 as that was certainly elevated with me as we’re inflammatory marker tests too but I was in a very severe state so it may not show up in blood tests if u have a milder form of Endo.

All the very best going forward x x

[Lozza4444 in reply to Sez73]

Wow you have really had a tough battle. I’m so sorry it’s so severe for you too. I don’t think people can understand how much it can affect you.

Wishing you all the very best too x x

[Sez73 in reply to Lozza4444]

Thanks love, yes no one realises about the impact of it all, such a shame when it affects so many lovely ladies. All the best too x x