I have stage 4 Deep Infiltrating Endometriosis affecting uterus, ovaries, bowel and rectum. By my assessment I've had endo for 25 years. Diagnosed last year. I've been advised by gynae and colorectal surgeons that my only option is open surgery, colostomy bag, and analogue drugs to induce menopause. I am requesting a second opinion at the BSGE clinic nearby.
I read and head alot about the risks associated with this extensive surgery, but what I don't know is what are the risks if I refuse surgery. (I did have this on my list of questions to ask surgeon but was so shocked by his description of the procedure that I forgot to ask!)
Can anyone shed some light for me?
Im especially keen to hear from anyone who has said No to surgery and how they are doing.
Thank you x