No other options or support!

[Shona132]

Hi ladies,

I was diagnosed with Stage 1 Endo last summer after having my appendix removed. I’m only 22 and been trying to manage it by using Microgynon Pill and not having my weeks break as per my doctors advice.

Well, now it’s starting to attack and I’m bleeding even on the pill so I’ve had a weeks break and it was terrible, that was two weeks again. I missed two pills this week and now I’m bleeding really badly again and the pain is unbareable. I’m still bleeding and getting pain while taking the pill and now I’m worried in case it’s getting worse. Every time I have a flare up I vomit, have constipation and will sleep all day every day.

I really want an accurate diagnosis as they said they only found small spots of it last summer but now I’m suffering more than ever and I’m not sure what else to do. I want to try for a baby so done fancy HRT and the antidepressants I am currently taking don’t mix well with the usual painkillers the doctors tell you to take. I really want to see if I can get this removed even just for some “temporary” relief until I’m ready to get pregnant but feel as though my doctors aren’t taking me or my pain seriously as it’s took them so long to diagnose and even then they were unsure to say I even have it as it’s only “a few small spots” on my right ovary.

Someone please help! I’m new to this and constantly worrying!

[MrsNGoo]

Sorry to hear Shona. Sounds like you going through your own hell with this. I would push for removal if u feel

So strongly about it. If your dr isn’t listening try another until they listen. Xxx

[Shona132]

I’m going to go to my urgent care centre today and see about what it is that I can do now!

I’ve just started a new job and this will be the second time I’ve called in sick with it already, I’m really worried I’m gonna end up losing my job despite the honesty I have given my manager in regards to the situation. I really don’t want to spend another 4 weeks of the summer in hospital battling with the doctors and nurses over what’s happening with my body as we all know - endo doesn’t show up on scans or in bloods but the pain and every other symptom is there!

I’m past the point of coping, it’s sending my anxiety into over drive and I feel like I’m getting really depressed and on the verge of a break down with it again!

[Boodie]

Hi there I too am in pain. I dont have endo but was diagnosed with pelvic inflammatory disease in dec 2015. I suffered with bad periods beforecdiagnisis heavy with clots and vomiting. I suffer with chronic pelvic pain and dysfunctional bleeding before and after PID. I was on prostap butvgad bad effects. I was on microgynon 30 for 2 weeks but started with migraines so far to stop. Now I am on cerazette mini pill and from the first day of taking it I have had bad increased pain and bleeding for 10 days now. I am so fed up of taking pain killers every day. I am awaiting the doc to give me a different option but I am running out of options. I cant have the mirena or iud due to high risk of reinfection to PID. It's crap the way we don't get listened to byvtye very people who are supposed to help us. I am 38 too and childless , really want a baby but seriously considering a hysterectomy as I have been ill for the past 2 and half years now and I have had enough. Sometimes you gave to think what do u want more- your health or a baby . Without ypur health you cant live and thats what God put us here for afterall x

[Shona132 in reply to Boodie]

Aww bless you! I went to the urgent care centre today and have finally found a doctor who listens and understands the struggle, better yet he’s actually educated in Endometriosis too! He’s starting me on monthly injections of Zoladex and has put me on the waiting list for another laparoscopy as he wants to have a look and see if it’s spreading and also remove what’s already there!

Good luck in your journey, mine is only beginning!