Toilet Troubles Endometriosis : Hi we have... - Endometriosis UK

Endometriosis UK

72,903 members53,260 posts

Toilet Troubles Endometriosis

E44E44 profile image
15 Replies

Hi we have been told at work we must go to the toilet in are Break and Lunch times I work in a School Teachers Support Assistant we have been told this as there have been too many staff out of lesson time , I tend to go when the Children are outside or having their choosing time which is their play time ( special needs School) now having endometriosis does anyone else have to go frequent during the day and if not get pain as yesterday when I got home out my car as I hadn’t been to the toilet that much as I normally do I was in agony felt like my insides were been dragged along the floor and felt like period pain , today is my day off and if I was at work it would have been a sick day as been in pain from yesterday and Monday not going to the toilet frequently, I may talk with one of the managers tomorrow as she knows I suffer from Endometriosis.

Written by
E44E44 profile image
E44E44
To view profiles and participate in discussions please or .
Read more about...
15 Replies
princessk09 profile image
princessk09

Hey, I get in agony if I don’t go to the toilet and it’s like a sharp pain. I go quite frequently but it tends to be the days leading up to my period and during it xx

lol2806 profile image
lol2806

Maybe you can get a letter from your GP as you have a valid medical condition and reason for needing to access the toilet when needed.

E44E44 profile image
E44E44 in reply tolol2806

Hi Thank You for reply , I had thought of this and I am going to go ahead I have a G.P appointment tomorrow.

lol2806 profile image
lol2806 in reply toE44E44

I hope it works out for you-you shouldn’t need to suffer.

lisams88 profile image
lisams88

Hi Hun, surely they can’t stop you from going to the toilet. I’m a teacher and I get to the point on most days that I’ve held it so long I’m in agony. I’ve spoken to my head and told her about my condition, something as simple as a 2 minute toilet break will prevent the pain. If they are still being ridiculous get a gp note sweetie. Xxx

Catherine232 profile image
Catherine232

Hi, I agree with the other replies here. Have a discussion with your manager. You may need to educate them about how endometriosis affects your bladder to justify why you require more frequent toilet breaks. If you find that they aren't willing to listen to your concerns, then definitely get your GP or consultant to put something in writing. There's a good Facebook page called Nancy's Nook which has lots of educational documents in it. I have learnt a lot from that site. It's research articles and other interesting articles, and I'm sure there will be something in there that you can print off to give your manager to read. Good luck xxxxx

Jen82 profile image
Jen82

Just wanted to weigh in. Endo falls under the Equality Act as long term chronic health so you have every right to have toliet breaks to suit you for health reasons. It's a reasonable adjustment and legally they need to support you. Your argument is without being able to go to the toliet when you need it would result in you off sick so therefore more costly to them then supporting you to perform at your best and stay healthy at work. Good luck. Get the letter. Speak with your manager. Stand your ground.

ferns80 profile image
ferns80

I agree with Jen82 about regular toilet breaks being a reasonable adjustment.

Linz4686 profile image
Linz4686

Hi - I have same problem - I’m in agony if I don’t go but in agony when I do go, sometimes I feel like I’ll pass out when going to the toilet as it is that painful -

It’s such a horrible diesease to bare, I hate the way it’s such an unrecognised condition.

SB90 profile image
SB90

I go as and when I need to, you can apply for access to work as this is classed a life long term medical chronic disease and comes under therefore the disability act. Access to work will assess your needs and potentially also send you to occupational health, measures then need to be in place to support you such as ergonomic chair, seating, rest breaks as and when and access to toilets. It is illegal for them to state this with a medical condition as detrimental to your health, I work in an FE environment lecturing and so go as and when and don't ask at all. This is a necessity, so isn't up for discussion- as long as there is a TA present if young children they havent ground. Go on the government website or google access to work- apply ASAP and also ask for occupational health- as they will recommend things for your work to do to support you.

SB90 profile image
SB90

gov.uk/access-to-work

here is the website. The forms are on this also- do it asap. I have ergonomic chair and everything to support me.

PandoraPenguin profile image
PandoraPenguin

I'm a teacher. Last time I had endo issues I made it clear to the Head that sometimes I just have to go "right now". I am lucky my room is opposite the loo and I teach Secondary. We had the agreement that if I had one of "those groups" I'd flag with a neighbouring teacher and wedge the door open, otherwise it was understood that I would only leave classes as an emergency. It's not ideal but they agreed to that as they knew if I couldn't go then I would get worse and end up having a sick day which was worse for their workload!!!

Bob1993 profile image
Bob1993

Hey!! I get the sharp pain too. I’m just wondering if it’s worse in the morning for you? When you wake up and your bladder is full?

E44E44 profile image
E44E44 in reply toBob1993

Hi yes I do get pain in the mornings but then I find those Actimel yoghurt drinks work first thing then during the day if I don’t go I get like a period pain cramps as my periods have stopped as on the pill .

k77a profile image
k77a

dictating when a person can and cant go to the toilet, sounds like a breech of a basic human need.

Not what you're looking for?

You may also like...

Toilet troubles!!!

Warning - poo talk ahead! I suffer with terrible constipation and I am beginning to wonder if...

toilet troubles 😔

Just wondering...... anyone else really struggle with painful bowel movements?? When I have to go I...
F10NA2 profile image

Doctor ignoring my endometriosis symptoms.

Hi i'm new here, so basically I'm 18 and for the past 4 or 5 years I've been having excruciating...
Abby18 profile image

Inactive Endometriosis?

Hello there , I'm wondering has anyone been told their Endo is "inactive "? I had LAVH plus BSO...
Julie-66 profile image

Endometriosis and IBS

Hello, I was diagnosed with endometriosis in April after my GP had initially told me I had IBS. I...

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.