1st lap done But they want to give me the 3 month injections to put me into menopause and do 2nd lap.

[pinpops]

Hi ladies,

So I’m 9 days post op. The lap was suppose to confirm diagnosis remove adhesions and free bowel and ovaries, also remove chocolate cyst on right ovary but ended up just draining the cyst. I was told my Endo was quite bad and all over my intestines and on my ovaries and uterus. I’m someone who suffers with a lot of pain in joints and muscles randomly and was recently told that I may have fibromyalgia if it’s not the Endo or the pop pill which is causing the pain. After the surgery they said they wanted to do the injection to put me into menopausal state for 3 months and attempt the 2nd surgery asap as the cyst could grow back quickly. I was surprised as they wanted to do the injection the day after my surgery while I was still dazed by the anaesthetic. I refused the injection as I didn’t feel ready for the side effects which was known to me hot flashes mood swings depression etc. I then looked up what medication they used for the injections and found a lot of negative info regarding zolodex and other similar meds they use for the injections. I’m extremely worried that I will have a really bad experience with the injection as I’m already depressed, have mood swings, night sweats sometimes, pain in joints and muscles, problems with my bones. A lot of people get bad side effects as it’s a very hard drug and also reports that the effects are longer term and do not leave you when the drug stops working.

Has anyone had experiences with these injections and the side effects of the drugs???

[Starry]

Big hugs, you are going through the mill and face a difficult decision.

I had stage 4, a large rv endo nodule and adhesions around my bowel and vagina along with endo on bladder and peritoneum and a small cyst. But no higher intestinal or uterus involved. And no bone issues, which I thought zoladex is contra indicated for.

I did try zoladex as my surgeon wanted me to take it pre op too and it is a hard drug. It disagreed with me and did cause me joint pain, awful nausea and terrible brain fog and memory loss and cognitive issues. Tibilone did improve this a lot in the second round when the dose doubled but overall I felt so ill I only managed 2 injections. It took me about 6 to 8 weeks to recover and I remember getting scared they had triggered real menopause and wouldn't go, but they did eventually clear. I am a type that generally reacts badly to medications though. My surgeon did still do the op though my nodule proved bigger on the day than they expected (which may just have been mri inaccuracy) my surgery itself was ok still.

But my endo wasn't as extensive as yours sounds and didn't appear to be a fast growing type so that is the risk only you can weigh up. Some ladies do seem to get good benefit from it and don't get as many side effects or find the trade off worth it.

I feel for you. I've developed fibro or cfs and get periodic joint pain since developing viral meningitis after my excision surgery and it's not easy coping with it on top of endo.

Take care of you. It's your body and you're the best judge of what you can handle. Xxxx

[Michelle19]

Aww that’s a lot to take in after surgery. I started zoladex injections along with Lival HRT but I couldn’t face the 2nd injection and my doctor agreed with the way I was feeling not to put me through it for another month. I was very moody, mild panic attacks and crying a lot. I just felt very depressed and like I couldn’t cope with the smallest of issues. I was very jumpy and my heart was racing all of the time.

Everyone has different experiences though. Can you get the injection monthly or do they want to give you the 3 month? Just thinking if you try the monthly that way you can see how you feel? If you like me didn’t agree with you it will be out your system after a few weeks. I’m just starting to feel normal again 3 weeks after my 2nd injection was due. Hope you make a decision for what’s best for you xx