I'm currently back under investigation again for pelvic pain on left side. It's the same pain I've had for 27 years and I had a hysterectomy and bso in February 2015. Previous to that I had 6 months of decapeptyl injections and I felt great, no pain at all, it was wonderful, so I was full of anticipation for the hysterectomy bso to work.
How wrong was I. It has progressively returned since then.
They removed my cervix in February 2016, but it's no better.
My gp thinks its undiagnosed endo or that was not found or removed during the operations, but I'm always met with consultants who are quite dismissive.
For example, my mum, aunt and both my daughters have endo but the consultants tell me it's not hereditary, decapeptyl is used for endo and pain disappearing is a clue that it's endo, but again they say not. I was told by the hospital last week it does not mean It’s endo or fibroids when the injection cures the pain, as it works for all sorts of conditions relating to hormones, and they do not know what it worked on for me, as I was like a new woman on it, totally pain free.
I had a deep ct scan on Friday on bladder renal area, but the pain us always in my hip bowel and left bum cheek. They said it shows inflammation in that area but not sure what is inflamed, ie the joint, ligaments ?
It would be wonderful to hear from anyone who has/had a similar situation and if they could let me know what and who helped them, as they have said nothing more they can do gyneocologist wise as I’ve nothing left. I can barely walk some days and my bowel is so sore on this side at times.
Many thanks 😔