Short of breath

[MrsNGoo]

Is this just because I am always so unwell due to endo that I rest a lot and when I do end up going for a walk I cannot wall fat before I’m exhausted trying to get more air and having to sit or lay down. Is this just exhaustion or is it because I’m not active?

[Hidden]

It could be either/a combination of both but it would be a good idea to discuss this with your doctor, there may be a reason why you feel like this that isn’t linked to endo - asthma for example xxx

[MrsNGoo in reply to Hidden]

I’ve never had asthma I’ve always been pretty healthy despite this crap

[MrsNGoo in reply to Hidden]

It’s not like I’m having an attack or anything or struggling to actually breath I can breathe it just is harder to. And when I lay down for ten minutes I feel ok again

[Hobnobbing]

You could be anaemic. I was like this a few years ago - I was training to do a half marathon & getting more breathless despite my training. My bloods were fine but my iron was really low.

[MrsNGoo in reply to Hobnobbing]

All my bloods r fine

[Abi_97]

Get tested for asthma I could walk and run until last year now I cant even run for a bus without needing my inhaler I say mine is due to my weight loss and the fact I'm not getting what I need from food 😮 But get tested it wouldnt harm you to 😮

[KelliMikkelson]

I have this symptom also. My shortness of breath from over excretion is due to inflammation from granulomas /endo in the right lung. One granuloma is located in right lower lobe and another in right middle lobe.

[MrsNGoo in reply to KelliMikkelson]

How do u find out if this is there? By op?

[KelliMikkelson in reply to MrsNGoo]

The granulomas were found by CT of chest. Not sure whether it matters but my CT was with contrast.

Granulomas sound pretty fancy but basically a collection of tissue due to inflammation. To truly know that it is endo, yes, I would need a biopsy and culture. I coughed up blood, not a lot but enough to understand what it was.

A chest X-ray won’t show anything but pleural effusions or infiltrates which would be related to pneumonia or atelectasis.

I feel like someone is sitting on top of my chest. A heaviness along with shortness of breath especially if I have been very active. The symptom is not everyday but it has been everyday lately. I will have a follow up CT on Wednesday.

You are not alone! I’m sorry you are dealing with all this. It’s not easy. Life is hard enough without having to convince your body to behave, lol! I refuse to let it break my spirit. Sure there are lots of days... last Saturday was one of them... where I just don’t have it in me to fight but I recognize the day for what it is... remember that tomorrow is a new day.

Prayers for you darling!

[MrsNGoo in reply to KelliMikkelson]

How did it go?

[KelliMikkelson]

No new granulomas so that’s good. And believe me I am relieved about the report. However, the report doesn’t back up symptoms. The thoracic dr said it is probable that the endo is in the lining of lungs which would not be seen on CT and very difficult for even a MRI. Symptoms are always present with other inflammation all over body.

[Bambaloo in reply to KelliMikkelson]

Hi! I’m struggling with shortness of breath (just coming up to my period) even with random things like walking up a flight of stairs, is it cyclical with you or all of the time? Have you had a VATS done? Where are you based? I’m in the UK and I can’t get anyone to consider endo in upper abdomen despite the fact that I have lung nodules seen ct with contrast and I’ve collapsed unable to breathe just shallow mini breaths twice both times I was told they didn’t find anything just the nodules ... I’m literally banging my head against a wall, the fact that thoracic endo is rare doesn’t mean I don’t have it.... ffs.... having a bad day and feel low, apologies for the rant, this disease is so hideous I can’t keep up with new symptoms every month... will it ever stop? Does anyone constantly have different symptoms? For me it’s been pain bladder, bowels, hips, ovary, pain during sex, shortness breath, pain under ribs, shoulder blade, neck pain, chest pains, brain fog....

Any advice welcome....

[KelliMikkelson]

Thanks for asking !