I thought it would be interesting to create a list of less common possible symptoms of endo, to see how it affects us all and see if there are any we share that we might not have connected to endo before. Obviously with lots of these we can't prove if they are connected to endo or not so just post anything you think is connected!
I'll start:
Heart palpitations
Low immune system (getting colds/coughs much more often and taking ages to get better)
Itchy eyes & dandruff (?!?)
Never had any of these before I got ill with endometriosis! X
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Lilloise
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My sweat smells like sour milk when I get my period and when I get ovulation bleeding, apparently due to hormones. (Hasn't happened since my lap over a month ago).
Clicky hip, sounds odd but I get pressure that builds up around my right hip as if I need to pop it?
I have a hip popping problem, it’s known as “dancers hip” as ballet dancers get it from their flexibility. I often wonder if it’s part of hypo mobility (which I have heard a lot of endo ladies have)
Pains in leg which feels like ‘growing pains’ similar to when I was a child. Radiates down my leg or sometimes just in my ankles or knees. Weirdly I had it so bad in my wrist yesterday and it’s always when I am due on, on or just after my period! X
Hiya. Greaf idea for a post! Check out my A-typical endo symptoms post. I have none of the usual symptoms such as heavy bleeding and pelvic pain ..My symptoms are as follows:
To those with night sweats if you are taking an antidepressant from the SSRI OR SNRI FAMILY ( lexapro/ Zoloft et ) they commonly cause night sweats as a side effect
Thats interesting to know. I personally take no anti depressants but would be interesting to hear if that's a theme for others. My night sweats are horrendous and I have to dry myself off every few hours with a towel on a bad night as I'm dripping
Yeah definitely (although I don't really bleed much it's still at 'that time') before being diagnosed with endo they tested me for early menopause as my symptoms fit that more...i don't have them every night thankfully x
Hi I can only agree with you - was prescribed amitriptyline as a painkiller couple month ago - and I never ever in my life used to have this night sweats. Just getting off them as these don’t seems to work for me because off other side affects. Thanks for mentioning this side effect
I have foggy brain all the time too. Can't work out if it's a symptom, side effect of medication or stress/emotional response to everything that is going on
Hi it could be any or all of them . I am better for being off all medications except paracetamol for pain. Trying physical therapy to help with stuff but v long slow treatment. X
It's interesting about the eyes and dandruff. I'm yet to have my lap and be diagnosed but I have those problems too. Never suffered with it until things started going wrong. All my symptoms have started since coming off the pill to try for a family. Does that tend to happen?
I also get
Shooting headache pains
Lumps and bumps under my skin mainly in my ear canals and nostril that become so painful.
Tbh I thought it maybe due to crohns or celiac the diseases I'm being tested for but many women with endo seem to get that 😮 I only eat 5 small ginger snacks in the morning because I cant stomach food 😮 X
I went back to the doctors a year after the pain started and basically said look I've lost 37lbs and I dont know why so test me 😤 Its one of the hardest things to request a test for because they dont listen 😢 I'd say keep visiting the doctor and pushing 😮 X
Fluctuating weight gain/loss throughout the month.
Acne gets worse before ovulation better after.
Mood swings
Achy throbbing legs
Shaking weakness feelings
Painful fuzzy bowel movements ovulation and period
Random bouts of nausea
Rubbish immune system
Wee loads also incontinence especially on period
Fatigue/insomnia
Back pain
Mygraines
Recurrent Miscarriages
Don't know if all related to endo but think they could be
💗💗🤗😘😘
I'm waiting for a diagnostic laparoscopy and hysteroscopy, but have suspected endometriosis. Some of my weirder symptoms:
- Heart palpitations (not sure if this is more anxiety related!)
- Shooting pain down left leg from my groin to my shin, aggravated by walking.
- Pulling feeling in my pelvic area when I lean back (rather than sit up straight).
- Fainting and vomiting when I have a bowel movement, esp. on period and when ovulating.
- Rectal bleeding when on my period and a few days before.
- Dizziness and nausea when my bladder is full.
- Bladder gets full REALLY easily, I have to wee a lot more, but not with urgency like I would if I had cystitis, if that makes sense? I can literally drink half a cup of water and need to go.
- Headaches that won't budge with painkillers, lots of water or sleep.
- Often freezing cold, despite everyone else being warm.
- Really painful breasts for up to two weeks before my period.
- Pain under my ribs at the front, and on my right side under my ribs round the back. Almost feels bruised, like someone has jabbed their fingers under my ribcage. This comes and goes.
- I also have the itchy skin thing, especially around ovulation. Hadn't made the link before, thinking my skin was just dry. But it's not really, it just randomly itches.
very much like everyone else boiling hot or freezing cold,pain in right hip and down right leg,pain in both knees and under ribs,swollen ankles,feet and fingers, I have really severe allergies,asthma and exzema all get worse when im on.crap immune system,reacurring piles,just a bit knacked really.but weirdest thing is a little twitch that feels like my phone vibrating just above right ovary doesn't hurt just vibrates really freaky and major swelling in my tummy I can go from flat to 4 months pregnant and back in a few hours thank god for elastic trousers also get really really tired there was and advert for complain vitamin shake years ago and the woman deflates like a ballon that's me like all the energy has just been sucked out of me .
I have had endo for over ten years and I can not have it removed as it is on my liver and kidney,
This is my first post as I am wondering if anyone has same symptoms I’m in my third week of pain and I bent over yesterday and felt like my stomach got stuck in a cramp as such, very painful, feeling bruised by it today. As it bleeds can it cause problems if my organs have become sticky?
I’ve thought for a long time it was in my bowel but i gave jyst been diagnosed with diverticulitis aswell because of the rectal bleeding.
My systems are awful swilling my whole body esp my right side, arm, leg hip just totalling drained, I catch every sickness under the sun too.
My mother just bought me selenium and folic acid to help? Any one tried before?
Just so people know I eventually had a mireana coil put in with extra provera as it’s not in my womb, helped a lot almost half the time in pain but recently had it removed and stopped all meds because I’m trying. All my full blown symptoms for four weeks are back and because my diverticulitis gets pushed by my swelling off endo I’m sick now 8 weeks since , feel like I’m drowning with pain, I can’t do anything I end up worse. Hoping these vitamins help me
Shortness of breath, chest pain, cough. I thought I had a lung problem been off work for 6 months under tests.
I was told last year in February that they suspect endometriosis as I have all the symptoms for it and the pain in my groin is unbearable. Lately I've had a swollen stomach unable to to wear tight clothing jeans unable to do up. Felt like it may have been a cyst. Was put on the pill for 6 months straight, that worked I went back for another load and the manufacturer doesn't do that pill anymore.
So I've been in agony for 4 weeks now trying a different pill. I was put on an urgent referal to see the gyno you'd think it would be a few weeks. Oh no 26th February 2019!!! For the next appointment. What a joke so I've gone private just waiting for an appointment to come through.
I believe now after reading an article that I have endo of the lung and diaphragm. During exercise I get the chest pain shortness of breath and my oxygen levels would drop dramatically.
I've noticed it more now I'm not exercising and having the pain in my groin to fatigue nausea dizziness heart palpitations. Pulling feeling in my groin pelvic area, was unable to bend over and stand up straight felt it tearing away.
It's all making sense now. I had my appendix out in 2010 and it's the exact same pain now as then. I belive it wasn't my appendix at all as the surgeon said it was fine.
Sometimes all the time feel alone having this. People call me lazy or its in your head, oh I have cramps when on period. Yeah cramps are completely different to what I'm experiencing.
I heard the immune system thing is because our immune system recognise that there is something in our body that shouldn’t be (endo) and is too busy fighting that (which it should for anything else but unfortunately that endo ain’t going anywhere lol) and thus it’s too busy to fight off colds etc.
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