Ovarian cancer : Just a question have u... - Endometriosis UK

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Ovarian cancer

MrsNGoo profile image
8 Replies

Just a question have u noticed how similar the symptoms of endometriosis and ovarian cancer are and have any of u demanded the test

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MrsNGoo profile image
MrsNGoo
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8 Replies
girli1111 profile image
girli1111

If by ‘the test’ you mean the ca125 bloodtest, then yes, I’ve had it. It is NOT a definitive test... in fact levels can be raised with all sorts of abdominal inflammation. Mine was raised to 473, and it was done as I had suspicious masses on ovary, normal is below 35) but I did not have cancer. The only absolute confirmation of OC is from biopsy. My diagnosis is grade 4 endo

MrsNGoo profile image
MrsNGoo in reply to girli1111

Ok. Yes the blood test was what I meant and did u get a biopsy?

girli1111 profile image
girli1111 in reply to MrsNGoo

My ovaries were removed as engulfed by endometriomas and yes, biopsies done after surgery. I was seen urgently by gynae oncology after an mri picked up that one growth had an unexpected structure. I had several other scans and another mri before they concluded that it was likely to just be the endometriomas after all

MrsNGoo profile image
MrsNGoo in reply to girli1111

Well I’d say it’s good I didn’t have cancer but endometriosis is still just as cruel

Bobenhams3 profile image
Bobenhams3

I had never even heard of endometriosis when I got diagnosed. I got a call from my gp while at work and she said we’re not 100% sure what it is but the good news is you don’t have cancer! I hadn’t even googled my symptoms so wasn’t aware that this was even a possibility.

MrsNGoo profile image
MrsNGoo in reply to Bobenhams3

Yea I read a little about it basically just the facts and none of the real bad shit so I knew I possibly had it before I was told it was likely. And then when I done research and cane on here I was like wtf my Gp never gave me any idea of how it can be.

Kate345 profile image
Kate345

I had a CA125, it was high, I don’t have ovarian cancer, I have endometriosis diagnosed. I wouldn’t do the CA125 it just makes you panic

MrsNGoo profile image
MrsNGoo in reply to Kate345

Yea I know and I know it sounds dumb but some days I’m like if thos is how I’m gonna be I’d rather have cancer Cos least they can remove it and there’s a better chance it not returning and I’d rather be dead than live like this

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