Confused can any one help, pain has disap... - Endometriosis UK

Endometriosis UK

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Confused can any one help, pain has disappeared

Jltdance profile image
6 Replies

Hello everyone I have severe endometriosis I don’t know anyone who has had it worse than me until now! For the last 6years I have been in constant pain every day resulting in bed and hospital missing work etc.... been on every medication going,pain killers, ops nothing works! My pain never stops everyday is so bad I just cry and can’t walk I don’t know how I keep going. But something extremely strange has happened! For the past 3weeks I have had no pain at all! I don’t understand I feel amazing can this happen? Can it just go away and disappear am nervous it’s going to come back and cry at the thought of me going back down hill I just can’t do it! Me and my partner have been trying for a baby many times we can’t have sex because of the pain. But this month has been so different no pain at all! I thought I must be pregnant but all tests say negative and I have come on my period, I have felt period pain for the first time in 6years amazing lol as normally it’s endo pain and period is nothing compared to endo pain! I am very light which is not normal for me either and completely off my food and feel sick. The only thing what hasn’t changed is that am constantly tired and no energy at all. Has any one else been thu this. Or give me any advice am truly grateful that I haven’t had any pain so happy but am just so confused and wondered if anyone else has been thu this and then gone bad again?

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Jltdance profile image
Jltdance
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6 Replies
NH88 profile image
NH88

Never heard of endo just disappearing and i dont belive that could be possible...i would go to doctors and ask for some tests....could it be your hormone level has changed? That would make you tired and reduction in estrogen means endo isnt getting fed and i would assume that means the pain would calm down....hence why in pregnancy you dont get the pain (or so i have been told)

Im glad your not suffering any more....but would still advise you to find out if somethings changed in your body just incase. Are you under a consultant? If so make an appointment, checking things out wont hurt.

Take care. X

Jltdance profile image
Jltdance in reply toNH88

Thank you so much for your advice that really helps! I will make an appointment with my specialist thank you once again for taking the time to reply and helping xxx

Jpreston profile image
Jpreston

Are you sure you are not pregnant? Maybe it is too early for it to be detected on the urine pregnancy tests. Some people continue to have periods through pregnancy. I would see the GP for a pregnancy blood test. I think it would be very unlikely with the level of your previous pain that it would simply disappear for no apparent reason.

Jltdance profile image
Jltdance in reply toJpreston

That’s what I thought it just doesn’t make sense as how bad I have it, I am really hoping I am pregnant but just so confused so I should ring the doctors and find out what’s going on. Nothing is adding up xxx

NH88 profile image
NH88 in reply toJltdance

Have you found anything out yet? X

NH88 profile image
NH88 in reply toJpreston

Wouldnt that be good.😆

Here's hoping 👍

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