Endometriosis UK
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What do I do? I don’t know who to talk to x

Ok so trying to keep this short.....

Back in August i was admitted to hospital as I was suffering with excruciating pains on my lower right side, they immediately said it was my appendix and wanted to send me to theatre! After me explaining that I suffer with Gynae issues they got a gynaecologist to come and see me. After a long conversation they decided to send me for an ultrasound and then I was diagnosed with a hydrosalpinx in the right tube. I was told that this had to be sorted by laparoscopy so I would need to see the consultant at a later date.

An appointment was arranged for me to see my gynaecologist (who I’ve been seeing for 4 years due to infertility) and she told me that it would be best to remove the right ovary, the fluid from the tube and any scar tissue she could see, the date was set for September.

After the op she came to see me “I’m really sorry but I haven’t been able to remove the ovary as both your ovaries are wrapped in scar tissue and I cannot see them to access them, also you have endometriosis on your left side. I think your only chance of pregnancy is going to by via IVF” I thought well that’s funny because you’ve already told me that I’m not able to have IVF or clomid because of my BMI anyway she continued “if you do fall pregnant naturally then I think the pregnancy will end up a ectopic pregnant”

I was so upset because I had got my head around what she had planned to do and then hearing that I was no further was a real set back for me (I suffer with anxiety/depression)

I haven’t heard anything since my next appointment is in February but if I’m honest I don’t know if I want to see her again!?!

4 years have passed me by and I’m no further on than I was when I first went to see her.......I feel like I’ve been given bits of information and left to make sense of it myself!!

This is a bit of a rant as I really don’t know what to do or where to go?!

The pain every month is horrendous, the back pain, tummy pain, painful weeing and pooing 🙈 being sick because of the pain, pain during sex, infertility, what do I do?

I really don’t know 😔

3 Replies
oldestnewest

Hey hun I am soooo sorry to hear what your going through. I know how u feel I wouldn’t wanna go back to see her either now u know you have endo you need to ask your GP to refer u to c a endo specialist (this might take months) where they can remove your endo atleast that can help with your pains and then you can work on lowing your bmi so u can go through lvf. I hope this helps u can always DM me personally x

1 like
Reply

It sounds like you have severe endo and need an onward referral to an accredited BSGE Endo specialist centre where they can treat such cases.

Your GP or your fertility surgeon can refer you

bsge.org.uk/centre/

NHS service specification for Endo centres and referral criteria.

google.co.uk/url?sa=t&sourc...

1 like
Reply

It sounds like you have severe endo and need an onward referral to an accredited BSGE Endo specialist centre where they can treat such cases.

Your GP or your fertility surgeon can refer you

bsge.org.uk/centre/

NHS service specification for Endo centres and referral criteria.

google.co.uk/url?sa=t&sourc...

Reply

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