I'm new..help..endo and infertility!

[joolsharding]

Hello all, I'm new here..... not sure what I'm after by posting, but maybe someone can help, make me feel better.

We conceived with my daughter immediately on trying, who is now just turned 5 years old. We've been trying to conceive our second for the last 3 years with no luck. I have suffered horrendous pelvic pain for the last 3 years and awful bowl cramps/movements!! I had entirely disassociated them from the infertility, only mentioning the pain and tenderness in my stomach to the dr, and only separately mentioning the back/bowel pain... never got put together! God I feel like an idiot now!!!! I had a diagnostic lap 2 months ago and they found severe endo all over my bladder, bowel and everywhere in-between. They chopped the lot out in the op which was clearly a lot more severe than i went in expecting but I feel like I'm really struggling since. I am glad that I have a diagnosis... meaning to the pain i've been in... almost justifies it. I feel like a prize baboon for not linking the issues and talking to the right people about it seeing as I've been in so much pain.

I also can't work out how I feel about the infertility. I've been given a reason for it, but feel like my brain has entirely changed from wanting it... I have justified how its better not to try anymore, control the pain instead, but my heart wells up emotionally as soon as I say it... its like the two aren't communicating anymore!!!!!

I had my first meeting with an endo specialist pelvic pain nurse today, she was incredibly lovely and very helpful but really we just talked as she said there was nothing she could actually do to help.

Hubby says there is no question, I'm more important than what we haven't got so find something to control the pain, but that means no more trying to conceive. My little one asks me every day for a sister!!

Has anyone else had these feelings and has any advice?

[AllWeNeedIsluv]

I'm so sorry hun it's awful What your going through.

I can relate hun my girls 4 and i my bubz stopped growing at 6 weeks I'm going for medical management tomorrow this will be my 3rd loss this year although I wouldn't have been aware of one of them found out on my medical report from urine sample.

I lost 3 before her in 09 and now this year.

I won't stop trying but I can tell you we we're trying for 2 years before this year and nothing went for a lap and they found endo a dense adhesion band and my tubes we're blocked the dye dpilt very very slowly which explained my horrific ovulation pain.

They told me it would cost me thousands to get pregnant or be ectopic. I did research came across serrapeptase it's an enzyme that eats, away at fibrin scar tissue mucous cysts things that aren't supposed to be there also helps with inflammation. I managed to clear my tubes don't know about endo or band but will find out soon enough. Hubby is paying for an excision op if needs be.

I'd say don't give up although iv had losses iv managed to get pregnant through my own research and I'll continue to do my own research until I have my daughter a, sibling. Please don't give up hun. Your hubbys right you come first but if you want something so bad what do you do. Fight for it. Research and fight drs aren't always right. My aunt had endo they told her she'll never have kids. She had 3 big smack in the face to them drs.

I wish you all the best if u ever want to talk I'm here hun.

💗💗🤗😘

[Hidden]

I feel like you’ve copied my story word for word! I could’ve written this myself.

I’m 31. We have a son who is almost 3. We conceived him after 3 months of trying. We started trying for a second baby when he was 17 months old; We thought a 2-2.5 year age gap would be perfect. After 8 months of trying, I met with a fertility doctor. My intuition was telling me something wasn’t right. The first few general tests came back fine, including my husband’s sperm analysis. A few more months went by and I opted to have an HSG done, which showed both of my Fallopian tubes as blocked. At this stage I was diagnosed as infertile, which was absolutely heartbreaking. My doctor suggested we go straight to IVF, but I wanted answers, not just a baby, so I asked him about exploratory surgery. He agreed that this was a valid option, so we went for it. At this stage we had been trying to conceive for 15 months. During the exploratory surgery they found extensive endometriosis over my uterus, tubes, ovaries, and pelvis. My Fallopian tubes were bent and twisted from the endo, which was the reason for my infertility. My uterus was adhered to my pelvic wall and was totally distorted. They cleaned up and removed as much of the endo as they could during this surgery. The diagnosis was a huge shock for me, and the doctors, because I’d never suffered the typical symptoms or pain, and horrendous periods etc. If I hadn’t asked for the surgery then it’s likely I never would have known about the endo. Now that I’m aware of it, I can pinpoint two symptoms that I always brushed off- IBS symptoms, like you, and extreme fatigue.

Fastforward to now- 5 months post surgery. We’ve stopped trying for a baby. Now that I’ve got this diagnosis I’ve almost been put off trying to conceive again. We still desperately want a second child but we are focusing on my health, and our wonderful little family of 3, right now. I don’t know if we’ll ever feel ready to try again, and I really feel numb about the whole thing. I went through the mourning phase when I was diagnosed as infertile back in May. Now I’m just numb.