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Endometriosis UK
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Pregnancy after endo

Hello lovely ladies, I just wanted some advice on my future (sounds dramatic I know haha) I was diagnosed and treated for my Endometriosis back in May and everything seems fine, however I am just curious about if this will affect me in the future when I decide I want to have a baby. I am 19 and I am not planning on having a child anytime soon but it is something I think about quite a lot, just wondering if this endo will still affect me in my mid to late twenties? I just want to put my mind at rest. Thank you in advance

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It's hard to say. I was diagnosed with endo in July this year after 2 1/2 years of trying to conceive. I did conceive after 2 years of trying, before my diagnostic laparoscopy but miscarried. I'm another year down the line and still haven't conceived again. I've just had excision surgery and I'm hopeful this will have improved my fertility as have read a lot of women fall pregnant quickly after excision. Some women with endo however don't fall pregnant even after excision. Some women fall pregnant with severe endo and without excision and some with mild endo struggle. You won't know until you try. Just know that there are lots of things that can be done to help you get pregnant these days, like ivf, just be prepared for it to take longer than you would hope to become pregnant (you have have tried unsuccessfully for 2 years in my area to qualify for fertility support) and don't leave it too late would be my advise. I'm 28 and started trying at 26, but have a history of early menopause. I've also always wanted to be a young mum but doesn't look like I'll be giving birth in my 20's as planned. Good luck.

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Hi,

It depends on many factors, but infertility is defo not a given. I have a healthy son who I had zero problem conceiving at 32 and no pregnancy issues despite having endometriosis for over 10 years (in my case, endo was on round ligaments and once excised I kept on taking Yaz, a minipill).

It is true that endo may affect ovulation and egg implantation, and that we have a higher risk of miscarriage and preterm labour than non endo women.

Ovulation can be affected because of endometrioma or endo on fallopian tubes or any part that is involved in conception (for example if your pelvis has gone funny because of endo)

You will not know until you try BUT baby making issues are only affecting 30-40% of us endo women; that means you could be one of those 7 out of 10 having no issues at all.

So if you have superficial endo, not too many adhesions affecting your uterus and pelvis, and you ovulate at a ‘predictable’ time (eg if you have regular monthly periods that are between 21 and 35 days), I wouldn’t worry too much if I were you.

If your periods cycles are shorter or longer, you may want to have a blood test to check your hormones levels as you need a balance pre and post ovulation time; also, if they are irregular, hormonal treatment might help (I was on the mini pill for 15 years, no period pain, no symptoms apart from that one time that got me in AE for suspected appendicitis which turned out to be very mild endo, periods every 28 days, 2days light flow, was preggo within 2 months of stopping it).

Hope it helps and the stats put your mind at rest.

What was your final Dx after excision? where was is found if I may ask?

Good luck 💪💪🎗💛

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Hi. Endometriosis is a progressive disease so it won't stop or go away, however it has a very slow progression. The difficulty is that every single case is different. Many things can affect how it develops and how severe is becomes, ie. Diet, alcohol, STRESS.

Ive been recently diagnosed age 39, but my symptoms go back 25 years! My consultant reckons I have had it all this time. Contraceptive pill massively slows its progression due to lowering oestrogen. I was on pill for symptoms from 16-21yrs, stopping cos of side effects. I have a 5 year old daughter now despite having stage 3-4 endo, and never having had treatment.

However we went back to gp cos had secondary infertility. My consultant (rather unhelpfully said), my condition as it is now is why they advise women with endometriosis to have all their babies early on!

I WISH I hadnt waited after our first baby, but I held off 2.5years due to workload, and planned wedding. I was an idiot! Had I understood endometriosis, I would have had my babies one after the other! I started a bit late as it was cos didn't meet hubby til I was 32.

For you: 19 is still very young and there's alot of life to be had before babies.. I was desperate to be a mum at your age too! Id say most important thing is to get regular checks, be aware of any new symptoms, slow down the disease using the endo diet, and do it when time is right for you.

Good luck xx

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