CA 125 level 48. Pelvic ultrasound normal, CT normal apart from ovary fluid

[Kate345]

I’ve had pelvic pain and lower back pain for 3 months.

I had a CT which showed fluid around my left ovary but nothing else. I had a pelvic ultrasound - not internal - which showed my ovaries to look normal.

I’m just got done CA 125 results back which are slightly high - im obviously worried.

I’ve decided to go priviate for a lapascopy so should have it done in less than a week.

Could it just be endometriosis?

[Poorna66]

Don’t worry. The ca 125 is not a reliable test for cancer at all. It can be high due to a number of reasons like endometriosis and even the day of your cycle. And 48 is not even that high a value. I have endometriosis and mine was 90 at the last test if I remember right. What my doctor told me was that it would be in the high hundreds or even thousands if it is cancer. I hope that puts your mind at ease.

Since you are having your laparoscopy in less than a week, they should be able to tell you if it is endometriosis or not, it is not possible to diagnose endometriosis based on symptoms alone or the ca 125 test. But you really don’t have to sit and worry about cancer just based on the fact that your ca 125 is slightly high.

[Kate345 in reply to Poorna66]

I’m more concerned about the symptoms match.

My CT showed fluid on my left ovary but nothing else.

I have bloating that comes and goes. Constant pelvic pain and back pain.

Last few days I can’t stop weeing.

I took the CA125 a couple of days after my period had just finished

[Poorna66 in reply to Kate345]

I wouldn’t worry like this, honestly. I would just stay away from google and wait for the lap. Google is the worst thing when it comes to health related queries. Everything is a symptom match for cancer, everything can cause cancer. First of all, back pain, pelvic pain etc can have so many causes, most of them relatively harmless. Secondly, from what I see you have been having the symptoms for quite some time and you are still relatively ok which is quite reassuring because cancer isn’t that kind to people. Thirdly, your gyno knows much more than you and me so if she isn’t worried, then most likely it is because there is nothing to worry about. We certainly don’t know more than them based on our google reading. Despite what they say or do in normal circumstances, doctors are trained to recognize serious conditions and most wouldn’t take a chance if they saw something alarming. Don’t worry so, you will make your pain worse and get stuck in a vicious cycle. Good luck for the lap.

[Kate345 in reply to Poorna66]

Just freaking out haven’t been able to stop weeing for 3 days

My CT was clear in July apart from done fluid around my left ovary then a external pelvic ultrasound showed nothing and my ovaries looked clear. Just freaking out about the worst case senerio due to the symptoms

[Kate345 in reply to Poorna66]

Symptoms since July which I guess is a while but not long in the grand scheme of it all.

Had my CT 31st July and ultrasound in September.

Hopefully by Today I’ll know when I’m having the lap

[Poorna66 in reply to Kate345]

Don’t worry girl, even non stop peeing can have many causes like high blood sugar and minor bladder infections. You are doing everything you can to get to the bottom of things, which is all any of us can do. Keep faith, stay away from google and have your lap. Good luck.

[Kate345 in reply to Poorna66]

I’ll try just difficult to relax or do anything I’m so fearful

[Kate345 in reply to Poorna66]

My mum said the same.

My gyno said if the CA125 was in its 1000s I’d be sent straight for an MIR scan

[Kate345 in reply to Poorna66]

My gyno said the same said the levels weren’t that elevated if it was in the 1000s she would be worrying

[Kate345 in reply to Poorna66]

My pelvic ultrasound showed nothing, really clear ovaries at a normal size

[Tillyfloss]

Hi. I found it very frightening having high ca125, mine was 2246, couldn't fault the hospital they told us it was alarmingly high and it was likely something was lurking, I had ct, MRI scans and various tests and it was down to the grade4 endometriosis and full frozen pelvis ( news to us as I haven't suffered like many do). It is very scary and I struggled but with a lap on the horizon try not to get to stressed ( easier said than done I know). Do you have support around you? Take care xx

[Kate345 in reply to Tillyfloss]

Mines only 47 the gyno said it wasn’t concerning but obviously I am worried.

I took the test a day after finishing my period which might effect it

My CT in July showed nothing apart from fluid around my left ovary. My external ultrasound showed my ovaries to look clear. Normal bloods fine. Waiting on a priviate lapascopy

I know.. just don’t feel right sick of pelvic pain and now I have. Weird fluid feeling down below. It’s awful to feel this way I keep going to A&E out of desperation which I know isn’t right but I get so worried

[Hidden in reply to Kate345]

Unfortunately you can’t make a final Dx with just tests. Only a laparoscopy can Dx endo OR (and I had one) a transvaginal scan BY an EXPERT ONLY!!!

If your symptoms are cyclical, it’s hormonal related, cancer symptoms (when it has symptoms) is not cyclical. 🎗

[Kate345 in reply to Hidden]

I do have pain constant but I can pin point when it worsens during my period. All the bad episodes have been period related and period pain.

[Kate345 in reply to Hidden]

I’ve had epsoids of no pain. My periods due and it comes back

[Kate345 in reply to Hidden]

31st August I was on my period, literarily agony came over me and I could barely walk 29th-31st July on my period again and in agony

[GP204]

Hi there. I just had the same thing. Fluid around an ovary. What was your outcome?

[Kate345 in reply to GP204]

Stage 4 endometriosis

[Rhomett]

Can we get an update Kate345?

[Kate345 in reply to Rhomett]

Old post but since that I was diagnosed with stage 4 endometriosis I then went on to have zolodex injections for 6 months then last April I had the endo removed and since then a lot of improvement