Is it worth going back to docs ? - Endometriosis UK

Endometriosis UK

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Is it worth going back to docs ?

Nicolarose profile image
4 Replies

Eeyyyy. So, I've seen a specialist about endo and he said I have it. I'm on the list for a laparoscopy however that may take forever as I'm only in the early stages of endo (doesn't feel like it).

I've been back once about the pain, he just said take the pill even though I've explained multiple times I hate the pill and it hates me.

Pain is getting a lot worse. Bloating has become so bad and regular. I can't stand or sit comfortably without pain. It can hurt if I need to pee and my belly bloats (badly? Never did that before). It comes on when I need to poop but doesn't go if do poop. I get stabbing pains on my sides where I would say ovaries are, shooting pains up into my abdomen and back. Still pain during sex. :( not having a fun time.

Is it worth going back to the gp? I really don't want to waste my time if I'm going to be told to go on the pill. There has to be another way to improve this shit storm

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Nicolarose profile image
Nicolarose
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4 Replies
Kelly3322 profile image
Kelly3322

You need to keep going back hun and keep going and keep going. You are the only one who knows your body and who knows what's feeling right and isn't feeling good. The docs also do not have x-ray eyes so can't see inside our bodies. Do not be fobbed off by this awful disease to people who don't know enough about it. I got fobbed off for a year the first year I was complaining with the pain and at my first laparoscopy ended up losing my right ovary and tube because they kept telling me I didn't have it (never showed on scans ) because it doesn't!!! I was covered in cysts and I'm lucky to still have my left ovary and tube working (although problems again and awaiting some more investigations before next lap so hopefully left side is still ok. I'm not finished having babies!. Keep at them hun and good luck xxx

Nicolarose profile image
Nicolarose in reply to Kelly3322

I want babies and I'm scared it's guna make problems :( it's finding the time to keep going back with work haha it's upsetting

Starry profile image
Starry

Have you thought about trying the mirena instead?

Also have you explored anti inflammatory diet changes (eg dairy, gluten elimination ) and eating for a liver health and supplements ( turmeric, ginger, probiotics) etc?

Nicolarose profile image
Nicolarose in reply to Starry

I've had the copper coil and it was horrendous so I'm very reluctant to try the mirena :( My diet is balanced, but I might look into that actually thank you

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