Hysterectomy advice please: Hi - saw my... - Endometriosis UK

Endometriosis UK
45,178 members38,093 posts

Hysterectomy advice please

2 Replies

Hi - saw my gynae team yesterday, met with the registrar. The consultant has advised I have a full hysterectomy + ovaries + endo excision. I can go private I think, thank goodness my fiancé has bupa cover.

Hopefully I can have it done by laparoscopy - has anyone had one? How long before you were walking around / driving / cleaning house etc, NHS website says 4 weeks.

Nervous but I'm so fed up with pain and periods and have tried every alternative and have had 2 laps since 2012. I know it's not a cure but at least it will solve periods, fibroids etc. I'm 40 now, not having my own children (decided a long time ago due to high risk of depression) and my fiancé already has 2 boys. Getting married next month so I'll plan it for January I think.


2 Replies

I had this surgery back in March this year and for me it has been a positive, life changing step. Regardless of whether you have private cover or not, if you have severe disease it is really important to make sure that you are seen by a bsge accredited centre. Mine was carried out as a two step surgery, so I had surgery in november last year where they drained the cysts on my ovaries, excised some endo from my bladder and then fully mapped out the rest of the disease. I had a course of prostap in between and then the hysterectomy.

I had keyhole surgery with 5 cuts, 4 on my tummy and then the vaginal wound where they cut out the cervix and remove everything. I was in hospital for 2 nights post op though I was up and about the day after the op. I had a drain for 24 hours plus a catheter for 48. It is a tough recovery and if you have excision, is far longer than 4 weeks. I had rectovaginal endo plus endo on my ligaments and ureter and had all of it excised. I was exhausted and slept most of the time for the first month. I think I was driving by 6 weeks but only short distances and not every day. My husband went back to work when I was 8 weeks post op and TBH I don't think I would have been able to manage everything on my own before then so you need to make sure you are organised and have help.

I had 13 weeks without HRT post op as my consultant advised that this would help reduce the chance of the endo returning. I've now been on tibolone for nearly 4 months and I am just starting to feel normal and only have 2-3 hot flushes a week instead of having 10 a day.

If you have any more questions please ask.

1 like

Ugh, that sounds horrible. My endo is definitely not as advanced as yours but it causes bowel problems and just gives me shedloads of pain. I had tibolone in 2012 with prostap and didn't get any hot flushes so am wondering what it will be like.

Thanks for reply, glad you're feeling better now.


You may also like...