Sky news article

[Georgina1475]

Sky news are running a very interesting article on the website today. Tried to link it here but couldn't. 😐worthy reading as it's all our stories.

[Hidden]

There's also an article in the guardian and on the bbc website

theguardian.com/society/201...

[Popetta in reply to Hidden]

Thank you for posting all the links to these articles to help raise awareness.

My personal experience at the moment is a bit different however could still lead to an endo diagnosis given that I have just found out from my mother that she also suffered from this before she had a hysterectomy.

Yesterday I had some ultrasound scans and found out that they saw evidence of a ruptured cyst which may have been the cause of all the severe abdominal pain, distension and other symptoms over the last couple of months. Although I have PCOS (both ovaries) and currently general diagnosis of "IBS".

Yep... it's complicated and precisely because of that and because I initially got told "it was all in my head" by my GP I sympathise with this cause.

It's a long arduous battle but given that we haven't a choice, then I opt to carry on the battle and fight for our rights!

All these women deserve medals for putting up with this general lack of understanding & support from medics, "friends" and family alike.

Best Regards

[AllWeNeedIsluv]

Just seen it tried to do the same link it but not that technical. It's good awareness is getting out there xx

[shazlovesevo]

There has been a lady on live on itv news talking about endometriosis today😀xx

[rosesinbloom]

I wanted to get a poster or something that I could put in my GP waiting room.

I was ignored so many times by the GP's where I go, even by women doctors, who when I told them how severe my pain was down there and it was like being impaled by a sword and I feel like I'm about to die of it, I was told that women get that on their periods.

I was wondering if I should put something up if I could, so if anyone else felt the same as I did and we all do, they will know to push it and it's not in their head, and they are not weak women who just cannot handle the same period pain that most other women get.

[NH88]

I think thats a very good idea. If you know of any consultants who would be willing to put their name to it it may help increase the impression given on this issue. Its not talked about and its not explained. The old fashion view that its blood travelling out of womb is not apparently correct my specialist consultant told me. Its a 1920s idea and the real one should be noted and taken seriously.

[rosesinbloom in reply to NH88]

Thank you.

I saw someone with EDS put up a poster at her surgery and thought about endo and how very many there are undiagnosed and struggling.

I was hoping there may be an official poster from endometriosisUK that I could possible get, but was unsure.

They have posters up about a lot of things in there, so hoped I would be able to.

[NH88 in reply to rosesinbloom]

I guess you would have to ask your doctors ifthe poster was of your own making....they can be funny if its not a legitimate medically endorsed thing.

I agree though that something should be done to help those struggling to even be acknowledged as to them having a genuine medical problem.

My sister was told by a councillor it was all in her head and it turned out she had the worst case her consultant had wver seen. Even after laser and being refused help when she finally had a hysterectomy all her organs had been so badly affected they had fused and the endo has absorbed into them so it cannot be removed! That was because it was left. Undiagnosed. And unhelped for too long.

She 1000 times better after the surgery but still has slight pain. NOTHING like before though.

Andshe had to FIGHT for her treatment.

[rosesinbloom in reply to NH88]

Yes, I would never make one, but you can get ones produced by the charities of the disease/disorder which are official, and sends the message of the charity too.

My god, how awful for your sister. I'm so glad she is better now though. It just needs to be prevented from getting that bad,we shouldn't be dismissed so easily.

[NH88 in reply to rosesinbloom]

I agree. Awareness is the only way that this can be addressed.

[rosesinbloom in reply to NH88]

endometriosis-uk.org/sites/...

I found this one and thought this printed off and laminated may be a good idea for the surgery.It's officially from endometriosisUK too.