Zoladex, hysterectomy, colostomy - Endometriosis UK

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Zoladex, hysterectomy, colostomy

Loubrush profile image
3 Replies

Hi All,

Been a while since I last posted. I have severe endo on bladder, bowel and pelvic area for (30 years and 8 laser laps). So it's got to crunch time. I wanted to hear about your experiences of zoladex before this major op.

I'm concerned about the side effects because I'm a psychotherapist and cannot sit with clients if I'm highly emotional with this drug. Also it's likely I will need a colostomy temporarily as fibroids and damage has been extensive, so I'm actually quite frightened by the implications. I have read here that for some of you, after all that surgery, you are still getting pain.

Your experiences would be gratefully received.

I will wait to hear...

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Loubrush profile image
Loubrush
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3 Replies
rajsam profile image
rajsam

Hi Lou Brush.. I was on Decapeptyl which is a similiar to Zoladex, Initially I was fine on it, but I began to get memory loss and major fatigue by month 7. I was given my last injection which led me to major panic attacks and anxiety something I have never had before... Its a very strong drug. I have been off work for 2 months, hoping to go back next week. My last injection was in July however I am still recovering and hoping that I will return to normal soon....as soon as you know the drug isnt agreeing with you please come straight off.. when I went back to the doctor I explained what had happened and she just shrugged her shoulders and stated its mental health... then took me off her clinic !

kIts clearly the drugs as prior I was doing fine mentally other than constant painful bleeding.... my GP has been alot more supportive...

Loubrush profile image
Loubrush in reply to rajsam

Hi Rajsam, thank you for your reply. I'm afraid it has confirmed the concerns I had about taking it. Unfortunately the surgeon will not proceed with op unless I have it as everything is so inflamed-he is worried he won't be able to see properly. I guess I will need to try it and see but because it's implanted for a month I can't just stop-is that the same with Decapeptyl? I need to be able to cover the mortgage payments, and I'm self employed so this could be very difficult to manage if I suffer adverse effects. Do you know how others have found it? Thanks again.

Sootyd17 profile image
Sootyd17

If your uterus and both ovaries r removed then you are completely free of endi. But u will suffer a surgical menapause that’s lasts a few yrs.

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