Prostap 3 injection : Hello I hope someone... - Endometriosis UK

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Prostap 3 injection

Juliarolls profile image
3 Replies

Hello I hope someone can help. I've been given this injection to help shrink a 5cm cyst on my left ovary. I've already had a right ovarian torsion and a hysterectomy. This is my last chance as they said it's too dangerous to operate as I've had many ops. The side effects aren't too bad, hot flushes, insomnia, joint pain.. but now my hair is starting to fall out... I wasn't told any of this before my injection.

Thank you

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Juliarolls
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chezzle01 profile image
chezzle01

Hi hun I had 7 prostap injections I'm now disabled because of it. I run a support group for all the victims #lupronvictims #lupronvictimshub

Please take a look for yourself. I only went with possible endometriosis and ovarian cysts.

I know have m.e arthralgia which is joint pain head to toe every day all day

Osteporosis

Narcolepsy

I'm registered as disabled because my legs buckle and I collapse

My vision is distorted

My short term memory is awful

My pituatary gland and hypothalamus are messed up you could call it I've got brain damage. It's messes with my endocrine system and my cortisol levels.

My brain doesn't work like it used to

My bowels do not work

Leuperinide acetate aka lupron , prostap

Zoladex gonapeptyl donaptyle etc and I'm sure they've got new names by now for it.

These are all the same chemotherapy drug that is primarily used to treat men for prostate cancer.

Please stop these injections. The side effects get worse fast. Please don't have any more. I just hope the damage isn't done already

Juliarolls profile image
Juliarolls in reply tochezzle01

So sorry for the late reply. Thanks for getting back to me. I'm so sorry your going through all of this. It's just horrendous.

Well I'm a month into the second and hopefully last injection. I feel like I'm In hell. My spark has gone, very emotional and sick of being in pain. Off to see my consultant next month. Right now I want to punch him in the head... let's see what he has to say. I'll keep you posted.

Thank you

Julia

chezzle01 profile image
chezzle01

Sorry I also have gastroparesis still have endometriosis and ovarian cysts but I now have my periods and menopause at the same time which is sheer hell on top if all my other illnesses. Sorry I'm going on hun . My names Cheryl newton if you want to join us? Facebook #lupronvictims

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