Ever paid privately for MRI scans? - Endometriosis UK

Endometriosis UK

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Ever paid privately for MRI scans?

3 Replies

Hi ladies. Hope everyone is having as good a day as possible. Iv been considering whether I should pay privately for regular/annual MRI scans to help monitor my Endo and just wondered if anyone else has resorted to this?

For background, Iv had severe Endo for about 20 years, diagnosed 10 years ago with emergency bowel surgery after the Endo had strangled and killed a large part of my bowel and rectum. Then felt much better for a good few years. But I have also recently lost my right kidney function to the disease, without really having any symptoms to indicate there was such a problem. I went in for a full hysterectomy last November but things were so messy they could only remove my tubes and ovaries, as well as the whole of my umbilica as this was also riddled and had caused me problems for a few years.

Sadly, I am still bleeding monthly despite the removal of ovaries. They assume a tiny fragment of ovarian tissue must have been left behind during the complicated surgery. So I still have a period, gutted! But have to say my pain and symptoms are much reduced at the moment and certainly bearable. My worry is that if the hormones are still strong enough to make me bleed, I assume the Endo will still grow and spread. I have already lost so much to this disease I am petrified of it still spreading and damaging organs unnoticed till it's too late. I know most consultants won't necessarily monitor/scan regularly unless you are suffering with bad symptoms, which I'm generally not at the moment. Has anyone ever considered a different way to monitor the growth of their Endo rather than simply waiting for symptoms to get so bad they go back for a consultant review?

Take care ladies xx

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3 Replies

I had a MRI scan privately recently. For a consultation before, the scan, and a consultation after the total cost was £770 which I didn't think was too bad at all xxx

in reply to

Thanks for that. Not as pricey as I was imagining. Did you ever ask an NHS consultant to look at it and use it in their consultation with you? I don't think I could afford to go completely private but just thought I might at least get the scans done as frequently as makes me feel comfortable if the NHS wouldn't offer that while I feel relatively well. I'm just scared that without that kind of ongoing monitoring another disaster might develop inside before it's too late to do anything.

Hope all is well with you at the mo. Thanks for the info x

in reply to

Yes, I am having an op shortly with the same consultant but at a NHS BSGE centre xxx

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