PIP payments for endo

[joannedange]

Any long standing chronic endo suffers put in for pip payments?

How was your process?

[shazlovesevo]

I put in for it in January, was refused so I went for mandatory reconsideration and was refused again. Basically making out I'm lying and there is nothing wrong with me. Bunch of tossers xx

[kitty270]

Hi, I have just been awarded standard pip. The form is the most important part so make sure you spend time on it and really think about how your pain affects you. If you can do something but it causes you pain then really you can't do it. If a tasks makes you so tired you take twice as long and have to rest for an hour or so after....then you can't do it. Remember to write what can't you do rather than what can you do. It's hard because it's admitting you need help and most of us don't like doing that. I was tearful when writting my form because it really spelled out to me how little i can do on my own. It felt really upsetting to admit that. Also be careful at the interview. Most of the questions are designed to check what you can do in front of the examiner. it's not necessarily what you say but how you behave and respond to the interviewer. You are being watched from the moment you are near the building so Good luck.

[joannedange in reply to kitty270]

Aw thank you, lots of help. How bad is your endo? I've recently had my 3rd op, but with bowel surgery this time as wel 😪 onwards and upwards x

[kitty270]

Yes it's bad. I have had 4 surgeries and having had significant endo on the outside of the bowel they think there could be endo inside the bowel which is causing daily debilitating pain. I also am unable to walk on a daily basis due to weakness in ligaments and nerve damage from the endo attacking the sciatic nerve. I am waiting more tests for further help. I filled in my form as if it's my worst day because quite frankly that covers 90% of the month. But even then I only just scored enough points to have the living component. I did get the mobility component which is great because now I can apply for a blue badge which when you are walking with crutches it is a real help. Good luck. If you want some help just message me.

[Jo0410]

I work NHS for a long term chronic illness team (nothing to do with endo) but our nurses advise to patients applying for PIP is always answer the questions with your worst day in mind whether it be the pain, the fatigue and even how that might affect mobility. I think the same can be said for endo when it's at it's worse. Good luck.

And yes the whole PIP system is horrible they even turn down people with MUltiple Sclerosis at times if they haven't expressed certain things on the form.