Endometriosis pain

[Painpainpain]

Can i ask what everyone Endometriosis pain feels like or adhesions if you have them ?.

[Hidden]

My endo pain feels like burning/soreness inside my tummy, like my insides are inflamed. I also have adhesions (frozen pelvis) but I'm not sure if I experience pain from this xxx

[Painpainpain in reply to Hidden]

Do you have these removed .

[Hidden in reply to Painpainpain]

Yes, when I've had laps, but it reoccurs xxx

[Painpainpain]

How long does it take to come back and do you know how long you need to go between laps ?.

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Mine unfortunately comes back very quickly and it's looking likely that I'll have a hysterectomy. Less than a year after my laps the pain reoccurs. I think mine is very aggressive unfortunately and I don't think this would be the case for everyone. I have Stage 4 & frozen pelvis xxx

[Painpainpain in reply to Hidden]

Did you have Adenomyosis too ?.

[Hidden in reply to Painpainpain]

Yes xxx

[Painpainpain in reply to Hidden]

My pain is like yours a burning plus a open sore cut sticky type pain too. I have suggested Adenomyosis but not confirmed Endometriosis. Do you know if your burning/inflamed pain is adeno or endo. and do you get any pain on your pubic bone. Do you manage to have a life with it and are you pain free after the ops. ?.

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I'm not sure whether it is my endo or adeno that causes most of my pain, I think both cause some pain. I do manage to live my life relatively normally, although I do struggle with pain and fatigue (and bleeding when I'm not on Prostap). Xxx