Advice please

[Nikkilouise]

Any advice on an oophorectomy. I'm only twenty and been put on the list. Im a bit concerned of being so young. I've also been told they don't freeze eggs on the NHS. — feeling confused.

[Hidden]

You should be concerned - I would be looking for a second (and third and fourth) opinion before having ovaries removed at 20 (unless you've got cancer and have no other option).

[Nikkilouise in reply to Hidden]

More than one doctor has mentioned it He's told me it's not a decision he makes lightly but he thinks it's the best for me 🤔

[Hidden in reply to Nikkilouise]

What treatment have you had so far? X

[Nikkilouise in reply to Hidden]

Three laps and prostap for nine months. I can't have any of the pills or anything like that x

[Hidden]

After your laps does your endo reoccur? X

[Nikkilouise in reply to Hidden]

Yup x

[Starry]

Hi I have been given the choice of this vs a high risk bowel operation and being doing some research on my choice.

Firstly are you being treated in a bsge endo centre?

What state are you ovaries in are they healthy? Is there a cancer consideration?

It's very rare to suggest this, in fact you are the first person I've found since it was proposed to me! this is usually only proposed when all other options have failed or are too risky. Usually excision is also required at the same time ( though that wasn't the case for me)

in my case first an successful round of zoladex treatment to simulate menopause is being done to see if symptoms are alleviated as it does not work in all patients and evidence that it is likely beneficial is needed.

It comes with significant long term risks that need careful weighing up against benefits so far as I have been able determine. Your ovaries serve other functions than just fertility,create other hormones and serve to keep us healthy even post menopausal. Firstly I've been told the uterus could weaken and a hysterectomy can later become needed anyway and also there is long term increased risk of heart disease, cancer, dementia, osteoporosis in particular. Surgeons would typically try to save one ovary if possible I believe especially in younger women.

I would suggest comsidering a second opinion if you are not being given options And I would insist on a zoladex trial and work out whether you could survive without add back hrt which of course reintroduces oestrogen.

My ovaries are healthy and the zoladex trial is not going well, so I am leaning against it at present, though I am terrified if Oopherectomy was seen as lower risk of the other route I must take. but I don't know your circumstances and there are situations where it is the best thing. PM me if you want. X x x

[Nikkilouise in reply to Starry]

Thankyou so much. I've messaged you with everything. Xxxx

[Jonohn]

I had a hysterectomy and oopherectomy eight months ago. My whole life I suffered with horrible mentrual and cyclic pain and had ovarian cysts and endo (which is why I opted to do it at age 38). The only thing is that something went wrong after the surgery. I was not on hormones for a little while but never had menopausal symptoms and had increasing pelvic and lower back pain. It kept on getting worse instead of improving so I was finally sent for an ultrasound. Imagine my surprise when they told me I had very large cysts on my left ovary! This was only eight weeks post surgery and was my first clue I had ovarian remnant syndrome. Something has accidentally been left behind during my oopherectomy and by communicating with the brain in had basically re grown but in a very unhealthy, extremely painful way. Anyway, my point is that the surgeon who did hyst did a normal surgery, but with my symptoms of endo, several c sections, and emergency ectopic surgery, she should have done something more radical. I went to an oncologist for the ors removal and she basically stripped out all the 'wallpaper' that covers the abdomen as well as doing several other preocedures. Now I am in menopause but cannot take estrogen given the endo and what she took out. So, if you are going to do the surgery find a very skilled oncologist or someone who is specifically trained with the removal of the ovaries and peritonium so that something like that will not happen to you...