Hi there, I'm 17 and have not been diagnosed with endometriosis but my mum and I are convinced I have it. Since I was 12 and my periods started I have been having very bad lower back pain and stomach pains. This seems to just keep getting worse and today I was writhing around on the floor for hours in agony. I also have very sporadic periods, always have bleeding in between periods and I am very fatigued even though I sleep plenty each night. I have been going to different GPs for years and have had a blood test and an ultrasound scan that showed nothing. Multiple doctors I have been to have told me it is all in my head and is triggered by my anxiety.
The pain I get each month is getting more and more unbearable and is massively effecting my college work. I don't really know where to turn at this point and was just wondering if anyone had and advice on what to do and weather you might think I do have endo or not. Thank you
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MurphysLaw
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It does sound like endo, sorry. Each lady with endo experiences it differently but the pain and fatigue are classic symptoms. I can sometimes sleep 13 hours and still feel tired!
Get a referral to one of the special centres. If you Google endo centres you should get a list, then ask your GP to refer you and the experts can check you out.
Have phoned the GP today and have an appointment in three weeks. Just worried the same thing will keep happening as I have been referred many times over the last 6 years with no luck
It certainly sounds like endo! I was 18 when I was diagnosed with stage 4 endometriosis after 10 years of begging the doctors to refer me, I got and still get extremely bad lower back pain especially when I lie down and relax, extremely heavy periods with clotting to the point I could never move out of bed! I also had an ultrasound and nothing showed up on mine but when i fi ally had surgery the endo was everywhere! I would keep going back to your doctor and try and get a referral! You could also possibly try if you would like to seeing the nurse to put you on the 3 month contraception injection it completely stopped my cycles so I no longer get the pain of having a monthly!
That sounds really horrid for you! I will keep going back, just feel like I am banging my head on a brick wall! I will also look into the contraception injection as that sounds hopeful!
Im 24 and im also not diagnosed. I started having more noticeable problems at 18. I bled in between periods, I had to go back on the pill because of this. Lower back pain that gets worse when I lie flat. Painful periods, painkillers wont help. I had to be prescribed strong ones as Im crippled. Im constantly tired now. Like i say, im 24 and they are getting worse. I though this was normal all my life. Its not. Put the pressure on and get answers. Thats what Im going to do! I understand the frustration you feel. I feel the same today. :/
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