Endometriosis

Hi guys. I'm having a day of feeling real sorry for myself .. but lately I've been feeling really down due to endo and now I'm getting to the stage I can't face going to anything that involves kids (Christening, communions etc) the only kid I can be around is my little sister. I just feel really down about the whole situation! Has anyone else experienced this?

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  • Hey Hun, I'm the same. I haven't got any magic words of wisdom or even any tips so I'll say this- it's ok to be sad. It's ok to accept that you're going through hell and to cry and wallow and whatever else you need to do to get through it. I keep away from children because it hurts like hell. I can't even walk down the frigging baby aisle in Asda and I can't even face seeing my niece. Am I selfish? I dont know but all I know is that right now I need to take care of myself. I do hope you are okay. I know it is heartbreaking- it's the double whammy of chronic pain and infertility that has put my future in limbo. Things do get better as time passes. I hated people telling me to be strong or that 'it could be worse'. This is a s**t disease and you're entitled to grieve. PM me anytime, hugs xxxx

  • Yes me too. I am avoiding my sister in law as she's pregnant. I'm green with envy after losing 5 babies and now I'm menopausal there's no hope at all. Just lost my mum and my endo has flared up yet again spent too long with cramps waking me in the night and draining me and ruining my day. Had every treatment going plus 4 laps. It gets you down. But. There's light at the end of the tunnel this disease is a disease of menstruating years (Mainly) and my gynae promised me it will ease after periods stop. Have you tried zoladex? It helped me a lot. Side effects can be hard to suffer but it slows endo down and no periods yay! Hope you feel a little better soon.

  • Sorry you feel so low. All I can do is sympathise as I have times like that when I don't want to be near kids or pregnant ladies as I just get too sad or angry depending on the day.

    It just takes time to process and grieve for all we've lost. I've had some counselling and know I need more but needed a break as it was rather overwhelming and I'm awaiting surgery so wanted to have that out the way.

    Just be kind to yourself and know it will get better - don't know when but it will! There's a very good line in The Best Exotic Marigold Hotel "it will all be alright in the end, if it's not alright, then it's not the end!!"

  • I get the same feelings i carnt even look at kids or even think about them without getting upset, its heart breaking. My brother in law just had a baby after trying for a few months and words can not describe how i feel. Ive bin told that doing things for you and trying to plan a life without kids would help. I carnt get over the kids part and im due to start counselling soon to try and make life easier.

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