Endometriosis UK
34,042 members30,452 posts

Constant battle trying to get help!

Hi all, I was diagnosed with endometriosis 3/4 years ago, I have undergone surgery and been on hormone treatment multiple time, I saw my consultant last July to find something to help and said to give my body six months and see how things go and that he would see me again in six months. I never got an appointment through to see him, so I went back to my go who tried to get me an appointment. I then ended up in a&e in agony and chronic pain, u found out that I have 2 cysts on my left ovarie, one of them is a normal cyst, but the other one is a blood filled cyst that is 37x26x25mm in size and the hospital think it keeps bleeding into its self, I also have blood surrounding my ovarie, I saw an on call gynaecologist after I had the scans done via A&E out patients, he said he is going to refer me to the chronic pain clinic and prescribed me codine, I then ended up in A&E a week later in even more pain, they again told me to take codine and sent me home, I have finally got a hospital appointment for the end of march, but I don't know how much longer I can go on with this pain, nothing helps, and every time I go to hospital they just keep sending me home.

If anyone has any advice to help me try and get this resolved I would be very much appreciated!

Thank you in advance.

1 Reply

Have you been referred to a bsge endo specialist clinic? You will be taken seriously there and they understand endo . Your GP can refer you directly bsge.org.uk/centre/


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