A lot of pain

[TwilightSparkle]

Has anyone with endo ever been on roaccutane for acne ?

[littlebrownbird]

Yes, me. Back in 2014. It worked well and I'm on a second course, lower dose now.

What would you like to know? 😊

[TwilightSparkle in reply to littlebrownbird]

I had it twice years ago .I think there is a link between roaccutane and bowel problems .this was a cancer drug in the 80s ,90s .has any one had a piece of bowel removed whos has taking roaccutane years before

[Hidden]

I was put on roaccutane aged 31. When I was forced to stop taking the combined pill due to having migraine with aura (the risk of a stroke is too great post 30). My face erupted with acne. Roaccutane worked a treat for me. My first cycle was 50mg per day. I had two subsequent cycles of 5mg per day for longer. I don't think I suffered any adverse effects.

[littlebrownbird in reply to Hidden]

@Twilight_Sparkle My first round was 40mg a day for 3 months and I came off it as my face looked better but I was getting skin erosions on my right shoulder however it was still worth it as the residual effect of the drug was glowing skin and no acne until late 2016, so I'm back on 20mg a day to sort my jawline acne (which is not even visible face on but the scars are but I cover them with a light concealer).

It's an excellent treatment, but like with all drugs you are closely monitored, you can't be TTC and if you can't see the benefit immediately be patient as the residual effect once you stop taking it are amazing.

I was more teary than usual on the first round, this time around, no such side effects but I think generally I'm in a good place.

Also, while you're on it, avoid using skincare for oily spotty skin and instead use stuff for sensitive skin like La Roche Posay, as your skin will respond better to it, as the skin dries and heals.

Hope that helps

[TwilightSparkle in reply to littlebrownbird]

I took this it has caused me no end of pain and problems .

[kyla78]

Yes I went on it when I was 20 over ten years later I was diagnosed with endo and pcos. Although it cleared my skin up its temporary because of hormonal conditions endo and pcos. I personally wouldn't ever go on it again it's not worth the side affects but everyone's different

[TwilightSparkle in reply to kyla78]

Yes do u have endo bowel problems ? I'm 42 I was on roaccutane when I was 14 and 21 .I have never been right since .I've had my bowel cut .can't do the toilet without pain I have a number of problems .I could not have kids either .I'm currently at a lawyer suing Roche the makers of roaccutane .I believe it has ruins my life .

[kyla78 in reply to TwilightSparkle]

Yes a little but they said I had no endo on my bowel I'm not convinced. However they found it on my bladder and ureter it's all connected really

[TwilightSparkle in reply to kyla78]

I look into roaccutane .it was a cancer drug .they have now changed the name to accutane .

[kyla78 in reply to TwilightSparkle]

I didn't know it was a cancer drug! I knew they had changed the name. when I took it they gave me a list of side affects I would get and a list I might get! I wouldn't personally go through taking it again. do your research, good luck xx