Endometriosis UK
36,808 members32,525 posts

I hate endo😢 Having a moan

Hi everyone,

Hope you're all well.

As you all know endo is very painful and causes all sorts of other problems.

I'm in constant pain day and night. My whole body hurts, I can't sleep at nights as my pains are always waking me up, I start burning, sweating and then the stabbing pains starts in my stomach and travels down to my bladder. I feel exhausted all the time. I'm having trouble eating solid food, I feel nauseous most of the time. Along with endo I have celiac disease, disc protrusion, thinning of my hip bones, terrible migraines, I feel dizzy all the time, I get leg pains, I have blood in my urine, my endo is on both my ovaries, around my bowels and sitting on my bladder, I keep getting infections, my whole back hurts.😢😪

My benefit has been stopped as they think that I'm fit to work. What else is going to happen to me😡😢 I just want to scream and cry.😢😢😢

Thank you for listening to me.


2 Replies

I wish doctors would read some of the posts on here and understand the real daily struggle of endo sufferers :(

I unfortunately have no useful advice since I'm going through the same thing but I hope things get better for you and all endo sufferers too xx


Thank you, I really wish the doctors could read read these posts then they will know what we go through.

Sorry to hear your going through the same thing as me. Having endo and my benefit stopped has really put a strain on my marriage.

Thank you for taking the time to reply to me. Much appreciated.

I hope you feel better soon.


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